Unmanaged Pain

Posted by annie2 @annie2, Mar 26, 2021

Hi all, so, I have been in pain for two years now. Started as unresponsive Gerd. Recently the pain has been an 8-9. Pain mgt is giving me gabapentin as well as noritriptyline. I have also been given anti-depressants for pain and anxiety as well. Nothing is working. No suggestions from Doctor.Thoughts?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@rwinney

Hello, welcome to Connect @rustydog2022. I'm sorry for your frustrations. Your plight is shared and understood by many.

Is a comprehensive pain rehabilitation program an approach you might consider? They focus on the mind and body as a whole, and help with physical conditioning, sleep hygiene, diet and emotional needs such as anxiety, loss, depression, and more. Mayo Clinic offers this kind of program at each of their 3 locations. Here's more information if you're interested:

Mayo Clinic Pain Rehabilitation Center -
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

Also, please find this video by Mayo Clinic's Dr. Sletten. He presents on Central Sensitization Syndrome, chronic symptoms and the cycle of pain:

Dr. Christopher Sletten, Central Sensitization Syndrome -

I know it's frustrating, but what is your next step? Do you have meetings with doctors to discuss your concerns? Do they offer alternatives for symptom management?

I hope your day is going well and your able to find a small bit of joy. 😊

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Thank you for the info & I met with an integrative Dr last Wednesday. My biggest concern is managing my pain well enough to go the 40 min 1 way trip the sit for her appointment as all of it contributes to nerve compressing making managing pain even more of an issue. I have scheduled with her clinical hypnosis session (she trained with Dr. Andrew Weil in Phoenix, AZ) & that I'm looking forward to. Also interviewed at a spine clinic for a pain pump, or simulator that I don't want bit being forced by under managed pain management protocols. Hoping they can find the additional reasons behind my pain besides having one of the largest herniated disks at the medical center where the radiologist I talked with had been there for 28 yrs. Lucky me, ha,., The neurosurgeon removed the entire disk & now it's beating up on the nerves... It does suck but going on too long & too many others having horrible pain issues too so not looking for sympathy. Pain sucks no matter the cause...

Originally wanted to go to the Mayo but United Health Care & Mayo have been battling out insurance issues so not covered currently as far as I know. I need answers ASAP but need to manage my pain sooner... Too many people are treated poorly in America & that needs to change, PERIOD...

Thank you for listening to my rant... 🙂 God Bless each of you...

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Good for you! It sounds like you are making moves out there with different approaches for pain management. Will you report back how the integrative doctor experience works for you, and so forth? Hypnosis is so interesting.

Is Mayo out of network with your insurance plan? I had to set my sights on the following year to get to Mayo Pain Rehabilitation and switched insurance plans to include out of network. I live in NY and was applying to FL.

Good luck with your next steps. Think poisitive thoughts. I'm rooting for you!

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@rustydog2022

Thank you for the info & I met with an integrative Dr last Wednesday. My biggest concern is managing my pain well enough to go the 40 min 1 way trip the sit for her appointment as all of it contributes to nerve compressing making managing pain even more of an issue. I have scheduled with her clinical hypnosis session (she trained with Dr. Andrew Weil in Phoenix, AZ) & that I'm looking forward to. Also interviewed at a spine clinic for a pain pump, or simulator that I don't want bit being forced by under managed pain management protocols. Hoping they can find the additional reasons behind my pain besides having one of the largest herniated disks at the medical center where the radiologist I talked with had been there for 28 yrs. Lucky me, ha,., The neurosurgeon removed the entire disk & now it's beating up on the nerves... It does suck but going on too long & too many others having horrible pain issues too so not looking for sympathy. Pain sucks no matter the cause...

Originally wanted to go to the Mayo but United Health Care & Mayo have been battling out insurance issues so not covered currently as far as I know. I need answers ASAP but need to manage my pain sooner... Too many people are treated poorly in America & that needs to change, PERIOD...

Thank you for listening to my rant... 🙂 God Bless each of you...

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@rustydog2022 my previous reply was to you, but accidentally I forgot to tag you.

Fun fact...I had an Aunt named Rusty and you've got me thinking about her. Naturally, she had a full head of red hair, hence her nickname Rusty. Ahh, good memories. Thanks!

PS: I leave you with this hopeful thought...

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Did you have covid? Not many know that horrible GERD can result from covid. The virus can attack your lungs and/or your stomach. GERD for me is out of control since July 2020 when I was sick with the virus. Pantoprazole helps but I hate what those drugs do to our bellies.

Help has also come to me by paying attention to what I ate that night before bed if I wake up at 3am with fire in my throat. So fat, peanut butter, ice cream or any kind of dairy - I can do a small glass of milk - I am a very very much dairy person. I eat a lot of cheese and have discovered if I'm too hungry to sleep, I can eat cheese safely.

I'm working on gearing up to go on a strictish anti-inflammatory diet. You might want to read about it.

the thing with covid, is it's hugely inflammatory. If you had it before this showed up, head over to the longhauler's fb page and read the many lists of symptoms people are having and being so frustrated with doctors as they can't get diagnosed. Hundreds. People don't know. You may find other oddities there. For me, I have POTS now. My pulse and BP can be very erratic. I found a fitbit watch helpful to help me tract water (make sure you stay hydrated!) food what and when, and how I am sleeping - which according to fitbit is much worse than I thought.

sorry this is so hard for you. I hope you get some answers. Be.

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