CKD Meals & Recipe Collection by Members

How are you doing kamams?

You may also check out Blake Shusterman's videos on YouTube. Great recipes and knowledge!

@ldrlaw, hi. Some days are better than others. CKD seems to be stable but gastroparesis keeps me down - only able to tolerate liquids, purees, soft foods in small amounts.

Had so many problems with Hy-Vee not being able to deliver renal-friendly, GI-friendly, diabetic-friendly foods any more and the company making mistake after mistake after mistake I have had to stop doing business with them and no longer can recommend their stores. Sad but true.

Hope you are doing ok these days.

Husband had appointment with vascular surgeon yesterday in preparation to place fistula. I commented that no one had really discussed the pros and cons of the two different dialysis approaches in any detail. He said that the dialysis center should do that but we haven't been referred yet to dialysis center. Called nephrologist's office - explained situation and NOW they said they would send over a link for a video that explains things in greater detail. Fine. Seems to me we should have gotten this before being sent to the vascular surgeon. Fired nephrologist. Getting appointments set up with new nephrologist.

@ldrlaw Oh, dear! No one discussed different types of dialysis with you???

Here is a link to American Kidney Fund's discussion on dialysis: https://www.kidneyfund.org/treatments/dialysis
I myself am a peritoneal dialysis patient, doing it here at home. As you can see, there are definite pros and cons to any type of dialysis. The surgeon was right, in my opinion [if that matters]. My thoughts are the nephrologist would present different modalities to be considered and be available to answer questions/concerns. Like you, I had to change nephrologists when I felt my needs were not being met.

If you have any thoughts or questions after reading the article above, please let me know.
Ginger

@kamama94 we commiserated about HyVee earlier this week. I forgot to inquire about your gastroparesis and I apologize. I too have diabetes (with gastroparesis) and CKD. I also have diverticulitis. Finding healthy foods that meet the requirements of these conditions is difficult at best. If I remember correctly you also have dentition and mobility challenges? Have you considered a meal delivery system such as Meals on Wheels? I used to volunteer to deliver these through my church. The system was operated out of the local hospital dietary/nutrition department and was customized to each client’s needs. I remember there being many different options possible. I don’t know if anything like this exists near you or if you are eligible but it might be worth considering.
(Post script - the last time I tried to make a recommendation about your gastroparesis you responded with a concern about diabetes. I have to count carbs and calculate a fast acting insulin bolus for everything that I put in my mouth! I am researching the feasibility of insulin pumps to make this more manageable. At present it is nearly a 24/7 endeavor).

@cehunt57, sounds like we're almost twins as far as chronic illnesses and diet juggling are concerned. I, too, count carbs (and phosphorus and potassium and sodium and protein and fiber and fat!) Am on 1 unit short-acting insulin per 5 grams of carbs before every main meal and some smaller meals if those have more than 15 carbs, and I take long-acting insulin at bedtime. I even weigh things like avocado slices and peanut butter to make sure I'm eating correct portions.

Your suggestion of Meals On Wheels is a good one except I don't eat any animal products other than free range eggs and our local Meals On Wheels provider does not offer vegetarian or vegan meals. I also don't tolerate a lot of soy which is in nearly every senior meal here. After weeks of inquiries I finally got some nutritional information and learned these meals are absolutely loaded with sodium.

I used to deliver Meals On Wheels, too, through a local church, but the people who used to prepare those are long gone and the counties have farmed out the meals to a commercial service.

I am now living on a half of a vanilla Boost with a banana for breakfast, juice and peanut butter crackers for a small meal between breakfast and lunch takes awhile to break off tiny bites and "gum" them in order to get them down,) then mashed avocado and soft bread for lunch or a peanut butter and jelly sandwich. I have another juice and PB cracker meal between lunch and supper, a whole Boost for supper, more peanut butter at bedtime or some baby food. I can't tolerate cereals at all any more, sad to say. And vegan protein patties or nuggets or crumbles are out even if they're soy free because my system no longer can tolerate much of anything really solid.

This plan is higher in fat than it should be but I can't get complete proteins otherwise since with GP I can't eat the higher-protein veggies any more because of their fiber, carbs, etc.

I'm anemic but iron supplements make me quite ill so I'm sort of in a Catch-22.

My PCP, Neph, and GI peeps all say my unstable blood sugars are related to the gastroparesis and I also believe the most of the fluctuations in glucose are related to slow or fast absorption related to GP. Docs think I might be able to postpone a feeding tube for another year if I'm lucky.

Sorry to burden you and everyone else with all this. It is what it is. And even though I have researched my buns off (and am pretty good at that even if I do say so myself, LOL,) I'm still open to suggestions. If it's something I've tried, I can rule it out, if it's something new, it's definitely worth consideration.

Hugs to you!

You are a fantastic researcher. When I think of all you have to consider, our diet seems a whole lot easier.

Thank you, Ginger! Well - we were told the placement for the two different types of dialysis and in a way, my husband is to blame because he had already decided that he wanted to go with hemodialysis. Still, I thought since this was the first time we were giving this consideration they should have talked about the pros and cons and that I would have an opportunity to discuss our desert living - sure seems we should have done that some time before we saw the vascular surgeon.

@ldrlaw, Thanks but all I really did was track down info someone else had come up with. Oh, yeah, and calculated milligrams, grams, etc. to at least 1 decimal place, LOL.