Horrible leg pain with fibromyalgia

@carolcunnynghaI understand your pain I've had fibro for along time all the meds Dr pit me on had side effects so I take Magnesium Malate 3pills in morning that helps I believe in helping with whatever helps so I do herbals,vitamins Tens Unit Heat and Ice it's surprising what an ice bag will do for you Fedupwithfatigue.com put a report out that Ohio University found a molecular spot in blood that only fibro people have this is exciting more research but at least something sounds promising.Have a good day

I’m crying from this new pain symptom, Thank you I will try those .

Hi all : I’ve been living with behcets since 2005 didn’t get DX for 3 year l it cause inflammation in your blood system. So I’m in pain allways I have had ulcers everywhere abdominal,mouth,vv,skin Ect. I ended up in hospital with medicated diabetes I had to fight for 2 years! I’m in pain alway ! I was DX with so mush and finally fibromyalgia about 5 years ago. Anyways I do the epsom in the bath but what really worke was I would pour an product called BLU It’s in the first aid alcohol,camphor, eucalyptus..it really work you pour it on body let it dry thanks LEE❤️

Hey @leemayle and welcome to Connect! It sounds like quite the journey you've had with being diagnosed with fibromyalgia. I hope things have settled down for you and you can focus on pain management now. Are you doing anything beyond epsom baths and BLU application to help with the pain?

I'm also bringing in @lioness, @carolcunnyngham, @sandytoes14, who also have fibromyalgia in hopes that they can provide some tips with how they've dealt with the pain.

@leemayle Welcome to connect . Thanks Tony I,ll try. Ive had fibromyalgia since sometime in the 90,s I do naturel things . The Epsom salts before I go to bed for a better sleep and no leg cramps also are you drinking enough water ? You should have at least 8 glasses a day . Especially during your evening meal . Get enough magnesium in your system for us with fibro you need more mag. then the normal but have your labs checked on mag and VIt D3 . There's an old remedy for leg cramps that works and that is as soon as a cramp starts drink dill pickle juice or eat mustard . Its the vinegar that helps . You can also use a washcloth soaked in E.S or vinegar and apply to your cramp. Doing Isometric exercises will help . When I first was diagnosed with fibro I went to a class on this and this is what they said of course doing your stretching and light exercise everyday is a must . Hope some of this helps you In the beginning I was put on Lyrica had side effects I didn't like Last was Cymbalta that for me was horrible but some people use it and have good results.

I too have had some pretty significant leg pain the past few months from fibromyalgia and am wondering what BLU application is? I just get up and down all day long to try to ease the pain.

@leemayle Is the "BLU" you're referring to ISO-BLU, the topical analgesic, that is helping with your pain? How often do you use it and how long does it provide relief?

reall hard to even get right leg high enough to get into a tub. I use a walk in shower, so I don’t have any advice to help you but my heart is with you. My terriable pain started after I tore my right shoulder AC joint but when they went into take spurs and find other problems they had to take part of collar bone. I had just got the job of my dreams and my company tried everything to keep me employed but after about 3 years of trying to keep me employed, the Fibromyalgia kicked into high gear and seemed was off more than I was their. With the family care act and having a great company to work for and I did have a profession that very few people knew about let alone how to keep the maintain end up. This happened in the early part of the 90’s. They worked with me till 2000 Feb of that year. I had so much pain not only from the Fibromyalgia, had herniated Disk in neck(cervical) XRay’s only showed narrowing and when I finally got a Dr to get me to a MRI they then say all the trouble with neck. When we came to help Dad take care of Mom after she broke her hip, My wife and Son had to do the lifting but we were here when Hurrican Charliee hit Punta Gorda and Charlotte Harbor in 2004 of August, luckless we were here at that terriable on 8/13/2004. After the hurrican I was trying to help Dad clean up the yard and was pulling limbs to front so county would pick up I had one of my dizzy spells and fell and broke my right forearm and a congintal birth defect that I never knew about that caused a growth between bottom of lumbar and sacrilick joint that broke and caused a herniated disk there. So since then has gotten so much worse, it has now causing so much pain in right but and leg, so much to right shin area calf . Now hurts to the point that burns bad on right shin when I drive, just the slight pressure on gas and break peddle makes it real hard to drive unless I am on Interestate with not much traffic where I can use cruise control. So my Doctor thinks that a spacer between L4 & L5 would help a lot. Mainly cause when I use my Fathers walker by leaning over the walker just that small amount really does relieve most of the pain in right but and right leg, especially the shin area, calf. I wonder if anybody has had good or bad results. I have heard both but so far seems about the same, good and bad, not just that but the extremes of good and bad. Anyway as far as the Fibromyalgia after 20 years of nothing but constant pain all I can say is I hope you have better luck than me. By the way this started when I was in high school my Senior year. Aprial of 1970 after a guy hit my 65 year Mustang he was going 55 and I was stopped at a red light. He hit me so far that the Tractor trailer driver that missed me said he didn’t know how he missed me and swore there was 2 people in my car but I was the only person in the Mustang but he kept looking in the ditch and weeds for along time. Just saying.

@leemayle I was diagnosed with fibromyalgia in 2012. I believe that I had it for 25 yrs at that point. For pain, I have been on most of the "approved" drugs at one time or another. Savella/milnacipran, Lyrica/pregabalin, Cymbalta/duloxetine. My current regime is Cymbalta 30 mg once a day, Lyrica 75 mg 3x day,10mg medical marijuana twice a day. Leemayle, how is your sleep? It is so important to get a good night's sleep. Some nights I count sheep and then get up out of bed if I can't fall asleep. The other members here on Mayo Connect have shared how they distract themselves from pain. You can check out the discussion here https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/?utm_campaign=search

@leemayle Oops! I meant to also give you a website that I found as a great resource for Fibromyalgia Have a great weekend https://fmaware.net/fibromyalgia-treatment/