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Horrible leg pain with fibromyalgia

Fibromyalgia | Last Active: Aug 30, 2023 | Replies (50)

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@TonyHart87

Hey @leemayle and welcome to Connect! It sounds like quite the journey you've had with being diagnosed with fibromyalgia. I hope things have settled down for you and you can focus on pain management now. Are you doing anything beyond epsom baths and BLU application to help with the pain?

I'm also bringing in @lioness, @carolcunnyngham, @sandytoes14, who also have fibromyalgia in hopes that they can provide some tips with how they've dealt with the pain.

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Replies to "Hey @leemayle and welcome to Connect! It sounds like quite the journey you've had with being..."

@leemayle Welcome to connect . Thanks Tony I,ll try. Ive had fibromyalgia since sometime in the 90,s I do naturel things . The Epsom salts before I go to bed for a better sleep and no leg cramps also are you drinking enough water ? You should have at least 8 glasses a day . Especially during your evening meal . Get enough magnesium in your system for us with fibro you need more mag. then the normal but have your labs checked on mag and VIt D3 . There's an old remedy for leg cramps that works and that is as soon as a cramp starts drink dill pickle juice or eat mustard . Its the vinegar that helps . You can also use a washcloth soaked in E.S or vinegar and apply to your cramp. Doing Isometric exercises will help . When I first was diagnosed with fibro I went to a class on this and this is what they said of course doing your stretching and light exercise everyday is a must . Hope some of this helps you In the beginning I was put on Lyrica had side effects I didn't like Last was Cymbalta that for me was horrible but some people use it and have good results.

I too have had some pretty significant leg pain the past few months from fibromyalgia and am wondering what BLU application is? I just get up and down all day long to try to ease the pain.

@leemayle I was diagnosed with fibromyalgia in 2012. I believe that I had it for 25 yrs at that point. For pain, I have been on most of the "approved" drugs at one time or another. Savella/milnacipran, Lyrica/pregabalin, Cymbalta/duloxetine. My current regime is Cymbalta 30 mg once a day, Lyrica 75 mg 3x day,10mg medical marijuana twice a day. Leemayle, how is your sleep? It is so important to get a good night's sleep. Some nights I count sheep and then get up out of bed if I can't fall asleep. The other members here on Mayo Connect have shared how they distract themselves from pain. You can check out the discussion here https://connect.mayoclinic.org/discussion/what-distracts-you-from-the-pain/?utm_campaign=search