Hi @rose82, welcome to the group. I moved your message to the Hailey-Hailey disease (HHD), also known as benign familial pemphigus, discussion group here:
- Hailey-Hailey Disease https://connect.mayoclinic.org/discussion/hailey-hailey-disease/

I did this so you can read some of the previous posts and connect easily with fellow HHD members like @skrammy54 @angelalmoralesc @patience83 @mickey1014 @z68m @bennett311629 @denziejones @angaz. Many of them have also lived with HHD for many years (decades) like you.

Rose, have you found that the flares have improved over time? Wearing skirts is a good idea.

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