← Return to Hailey-Hailey Disease

Discussion

Hailey-Hailey Disease

Skin Health | Last Active: May 12 12:45am | Replies (157)
Comment receiving replies
@rose82

NEW MEMBER SEPT 25 2022
I am 82 years old and I have been living with HALEY-HALEY for 47 years some times were very bad, I have 4 siblings and cousins that all have it.
I know that because of the disease my skin is very thin and my age does not help either. I wear skirts all the time because slacks iterate and makes maters worse. Will add photo next time if I can find it in my phone.
Rose 82

Jump to this post

Replies to "NEW MEMBER SEPT 25 2022 I am 82 years old and I have been living with..."
Colleen Young, Connect Director | @colleenyoung | Sep 25, 2022

Hi @rose82, welcome to the group. I moved your message to the Hailey-Hailey disease (HHD), also known as benign familial pemphigus, discussion group here:
- Hailey-Hailey Disease https://connect.mayoclinic.org/discussion/hailey-hailey-disease/

I did this so you can read some of the previous posts and connect easily with fellow HHD members like @skrammy54 @angelalmoralesc @patience83 @mickey1014 @z68m @bennett311629 @denziejones @angaz. Many of them have also lived with HHD for many years (decades) like you.

Rose, have you found that the flares have improved over time? Wearing skirts is a good idea.

VIEW AND REPLY