I am looking for others diagnosed with microscopic colitis

I read a book by Wayne Persky - "Microscopic Colitis - What Really Causes Microscopic Colitis, Celiac Disease, and Other Autoimmune Diseases?" and it briefly mentions that early research showed the CC was frequently associated with connective tissue diseases, including RA (rheumatoid arthritis), and several other autoimmune diseases. Is it true? Don't know.

Constantly. If you saw me a year ago I had a body like a 20 year old, I am 66. Suddenly, my stomach looks like I am 8 months pregnant whether I eat or not. Nothing fits. I cry.

I went to Mayo for my first visit and have to go back to see 3 MDs in June. I have a history of CDIFF from antibiotics. I was on Avantin for a UTI, it's infusion. My stomach went down and a week later it was distended AGAIN

I was diagnosed with Lymphocytic Colitis this past week following a sigmoidoscopy followed up by pathology findings. Today I started an 8-week regimen of Budesonide (generic for Entocort), 3MG once daily in the am. Have also altered my diet per many of the suggestions on this forum and in other places. Looking forward to more discussion on this issue and will report on my own progress.

Please let us know what you changed in your diet? I know everyone is different but the more puzzle pieces we find might help one or more of us. Thanking you in advance.

I am new to the group, too, and am seeking advice/information on Ulcerative Colitis. I am a 62 year old female, diagnosed with UC 2 years ago. I had been on oral mesalamine, which worked for 3 months until I developed acute pancreatitis (drug induced). Prior to that, I had been prescribed Canasa (suppositories), Uceris rectal foam, hydrocortisone (oral and rectal). GI doc is pushing ENTYVIO and I am terrified of possible side effects. I am still in relatively good health, never smoked, do not drink, eat a healthy diet and exercise regularly. I am waiting for an appointment with integrative medicine doctors to try acupuncture and herbal treatments like aloe vera and Boswellia? Has anyone been on Entyvio or tried more natural things for Colitis and have they helped? The biologics and their side effects scare the hell out of me! The fact that I developed pancreatitis from 4.8 G of mesalamine daily was frightening and GI doc said that was a rare side effect. This is a horrible debilitating disease and I just want my life back. I have had bloody diarrhea daily for almost 2 years, other than for the 3 months I was in remission on the mesalamine. I can barely maintain 110 pounds and rarely leave the house. Has anyone had good or bad results with their UC treatment? I also take a probiotic (VSL#3) that the GI doc recommended and I just started to take turmeric, as that is a natural anti-inflammatory. I am frustrated and confused. I understand that this is an autoimmune disorder and cases are increasing rapidly in developed countries. I have no family history of any type of Colitis and I have never smoked, which are both sometimes factors. Thank you so much for any insight or suggestions!

I'm puzzled by one aspect of the current medication my GI doc has prescribed for Lymphocytic Colitis. I'm on budesonide 3mg daily for 8 weeks. Yet, the studies and online discussions I've seen regarding budesonide treatment for LC seem to indicate the normal prescription is 9mg daily for the same time period. I'm planning to raise this question on my next visit, but just curious if anyone has been prescribed a dosage this small for this condition.

How long does Budesonide take to before normal BM?

My husband took budesonide for seven weeks before feeling any relief; he is still taking this drug now going 15 weeks his Dr. will begin weaning him off the medication soon. Who knows what happens after that. It’s been very hard.

Now in my 4th week of Budesonide, but still only 3mg once per day. My main problem was constant D and frequent urgent trips to the barthroom (6-9 times daily), with some fatigue. I've never had any pain, dissension, weight loss, etc. The D comes in cycles, which originally made me think my problem might be a parasite of some sort, but my GI specialist doesn't think so.. More likely the "cycles" are probably related to something I'm eating.

Its hard to say whether the result thus far is the medication or the fact that I've altered my diet considerably. I'm also using Metamucil daily, which I believe is helpful. Presently I'm also waiting for results from Enterolab in hopes of taking a shortcut to identifying food sensitivities or allergies. Once I finish the remaining 4 weeks, if there's no significant change, I'm going to have a conversation with the doctor on why I'm on 3mg/day rather than the 9mg/day which seems to be standard. For now, I'm willing to do it his way.