Has anyone experienced internal vibrations?
I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.
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I have very mild version of this. It feels like I'm nervous or scared when I'm not. I sometimes can feel my heart pounding. My legs shake (internally) which makes walking and balance challenging.
I was diagnosed with orthostatic tremor- evidently rare. I also have essential tremors which are worse when I am under any stress. I have been prescribed many drugs including gabapentin and inderal. I cannot tolerate the side effects of most meds. Gaba at a VERY low dose has helped a bit. What helps is vigorous exercise- walking and stationary bike and meditation. I'm curious if anyone else suffers from these tremors and what helps them. Thank you
Hi there @rajiv33, welcome to Connect. Wow, what a story! Thanks for sharing your journey, and the message of not giving up. I'm glad your doing better since the ENT stepped in. Who knew, right?!
Learning about our central nervous and peripheral sensory input systems is powerful stuff! We may never really stop to think about how they are our bodies computer system until being faced with odd symptoms like muscle twitching, spasms, vibrations, etc... and not knowing how to connect the dots or why things are happening.
Have any of your doctors educated you about central sensitization syndrome (CSS)? Here is a video you might be interested in from Dr. Sletten of the Mayo Clinic's Pain Rehabilitation Center:
I live with CSS and went through a similar journey. This video may be helpful in explaining some of what you have experienced also. Do you mind letting me know if any of it resonates with you?
Hello Rachel volunteer mentor
Thank you so much for taking the time to read my story and Also reply with great advice.
Firstly I must say oh wow living with css, it must be hard also difficult in daily life routine
My doctors never told me about css but now I know and after listening to the video some of the symptoms he talked about and how it affects the body have me thinking!
On my next check up I will mention it to my physician.
Currently I was tooken off my meds and because of bad side effects.
As I'm off my meds my bp readings are very high for example. 160/102
Thank you once again Rachel
Keep up the positive fight in life
Hello ellenshe,
Hope your doing much better, I know how difficult and frustrating it must be everyday going through this.
Keep positive and keep pushing.
Did the inderal help at all?
I know you said that low dosage of gabapentin is helping you. Is the gabapentin side effects tolerable?
Also I know you said heavy exercise helps you manage but after working out does the tremors come back more severe ? Also did you ever do a iron test ?
I'm currently of my meds an I recently did an iron test an it came back low and my physician said it can mimic and add to essential tremors.
Hey there, my name is Tony. I am ending my second year with internal vibrations uncontrollable sweating and extreme anxiety. I thought it had something to do with the Covid vaccinations. I have been to the emergency room three times and they keep telling me I have a cute anxiety. They put me on Xanax but it does not take the vibration away from my innards. My body shakes all over and especially within my organs and my chest. It’s even hard to communicate with society with this going on. It was my birthday yesterday. We were in a 69° room. My entire family knows about this but saw it firsthand yesterday when I was dripping from my nose and my eyelids as well as my ears. I don’t know what it is and I have seen five doctors for it. I have tested for Lyme disease, Rocky Mountain spotted fever, a bad heart or failing organs. I checked out without problems. When a task at hand comes to mind I start sweating uncontrollably. Even writing this message I have begun to sweat. I’m not sure what it is but I wish somebody would figure it out. I’ve had the Covid vaccinations with the booster. I’m pretty sure that’s when it all started. If anybody has any ideas about what is going on, I begged you to tell me how to fix it. My quality of life is gone. My doctor has given up on it since he can’t figure it out. I live in Richmond Virginia. If anyone has any ideas, I will grasp at them. I’m terribly sorry for anyone else going through this because it is by far the worst thing I have ever been through. And it never ends.
Tony-
I need help. Right before this started I bought an old farmhouse do you live in but it needs an astronomical amount of work to get it there. I started out strong but when this hit me, I am unable some days to even drive out there. What is this? Honestly! We need to find out what this is. Thanks for reading my message. I hope to hear back from somebody. Cheers
I have posted about my symptoms just now. You should read what I wrote. I did not mention the ticks or the muscle spasms that I’m going through. I have cramps in my muscles and my hands twitch to the point where it’s hard to write sometimes. It is a horrible situation to be in since there’s no doctor so far in my Netwerk. I have seen many doctors and have been to the emergency room many times. I sweat uncontrollably and my entire body vibrates 24 seven. They put me on Xanax and it may help a little bit but it doesn’t stop anything. If you find out what’s going on with your body, please share it with me. It is driving me crazy. Tony
I’m new to this forum as well and see the last post to this thread was in 2019. Hoping to revive the conversation on behalf of my brother-in-law, who has been experiencing internal tremors coupled with profuse sweating and hasn’t been able to get a firm diagnosis or any resolution. Any new insight out there?
Good night potta 54321
Wow! Hope your keeping a positive mind set despite your situation?
How long did your symptoms started?
Also what triggers your symptoms?
Currently I've been to a lot of doctors and even now I'm still having issues I know I mention my E.N.T specialist said I had allergy but as of recent my symptoms came back and the meds aren't working any more it's been a month now I was taken off everything.
I'm currently doing research and process of elimination and also experimenting with my food intake
And I must say my internal tremors has eased up tremendously so I will post on my results within a month an the progress I have made and what I'm doing because I have reached a point where doctors and specialist having me running test and no results on what's causing these symptoms. Rachel volunteer mentor mention to me about css
When I mention it to my physician team they were like " Mr seulal we have run extensive test and it does not point to css"
So that's why I'm off everything and experimenting " not mad scientist kind of thing "but educated and informative decisions because no doctor thus far knows nothing.
So if my progress works or help in any way possible I will post the process so if it can help someone out there that will be so great
Till then potta 54321
Also I read your previous post with you , thinking it's the covid vaccine
I'm no doctor yet but yes the vaccine has side effects that's not yet listed or still being determined
Now if you said you think your troubles started around that time the vaccine could of brought up an underlying issue that you never knew
I’m so sorry this is happening. Have you tried propranolol?
Hello. There seem to be many of us who experience internal vibrations/internal tremors. From what I have seen, perhaps a third or a quarter of the people who have them got them from either covid or the covid vaccines.
I hope that you are able to recover soon. There are ways to reduce or eliminate the body vibrations that are discussed on the "internal tremors" and "sleep tremors/internal vibrations" facebook groups (the second group is only for people who wake up with the vibrations from sleep, as opposed to 24/7). However, the diagnoses that you will read about in those groups are all over the map. There are so many varying diagnoses out there. I wish there was a single, correct diagnosis, but I don't know what it is. On this MAYO forum, you will hear a lot about Central Sensitization Syndrome (CSS) and the MAYO CLINIC program for CSS recovery, but there seem to be many other diagnoses out there as well. Best of luck! I wish you a swift recovery.