Looking for young people with Graves Disease

Hi @brittntip, welcome to Mayo Clinic Connect. I've also added your discussion to the Endocrine System group: https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

Fellow members, @amtxo1989 @mcmurf2 @user_ch031a490 @quiteachiver75 @terri and @amihealthy have also discussed Graves disease, although I don't necessarily know their ages 🙂 See some of their posts in these discussions:

- Thyroid Graves Disease: Anyone else? https://connect.mayoclinic.org/discussion/thyroid-graves-disease/
- To people with Graves' disease: Do you have eye issues? https://connect.mayoclinic.org/discussion/people-with-graves-disease/

Brittntip, while we wait for other to join in, why don't you tell us a bit more about yourself. When were you diagnosed? What treatments, if any help you? What do you find most challenging living with Graves disease?

not early 30s,, but I do have Graves disease,, I"m 56. Have had it for (2) years but not diagnosed officially till a year ago.

So sorry to hear your diagnosis. My 35 year-old niece was just diagnosed with it. I don't know a lot about her treatment at this point. I do know she could use support. She's a wonderful person with a great husband, a job she loves and an adorable 2 year old son. This diagnosis is emotionally tough on her and all who love her. How are you feeling? Got any ideas on how I can connect the two of you?

Hi @malter1011. I might suggest that you invite your niece to join Mayo Clinic Connect. Let me know if I can help.

Are there any support groups for Graves Disease? Online or face-to-face in Minnesota? I feel very alone in this. I don’t know anyone else with the disease. It’s been a rough ride.

I am 36 and I have Graves Disease. I would really like to get into a support group or start one.

@melrosejagger this is a good place to connect with others living with Graves' Disease like @mcmurf2 @brittntip @evalvarez @sassylynn and others.

You may also wish to look into support groups run by the Graves' Disease & Thyroid Foundation: https://gdatf.org/community/support-groups/ and oneGRAVESvoice: https://www.onegravesvoice.com/

When were you diagnosed with Graves' disease? What is your biggest challenge at the moment?

Hello,
My son has recently been diagnosed with Graves Disease at 13.
Coming up short on parent support groups. Anyone know of any?
My son is a special kid not surprised I'm not discovering much research on Young Men with Graves Disease.
Trying to get him a functional Medicine Dr nothing is covered by his state insurance of course but I can't let money be the reason my baby doesn't get every opportunity to become apart of that 25% that get to remission.

These pictures were taken day after diagnosis

Hi @supercooper, welcome.
First, you may have noticed that I moved your post to this existing discussion:
- Looking for young people with Graves Disease: https://connect.mayoclinic.org/discussion/people-with-graves-disease-1/

I did this so you can read the previous posts and connect with other members like @melrosejagger @mcmurf2 @brittntip @evalvarez and @sassylynn.

You might appreciate this story:
- Yes, Young Boys can Develop Graves Disease https://www.chop.edu/news/yes-young-boys-can-develop-graves-disease

Money should not be the reason that your dear boy doesn't get treatment. According to the Community Guidelines, fundraising links are not permitted. However, I encourage to you look into financial assistance programs at hospitals near you. For example, Mayo Clinic offers - Charitable Care and Financial Assistance https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance

And Mayo also has an excellent Children's Center https://www.mayoclinic.org/departments-centers/childrens-center that may be an option for you and your son.