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My Experience on Evenity for Treating Osteoporosis
Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".
I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.
The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.
My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.
My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.
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Please let us know your results. Our prayers are with you.
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2 ReactionsI wish you the best, @ bridget77. None of this is easy. In addition to taking the medicines, do your doctors think any physical therapy can help you?
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3 ReactionsI would be very interested in learning what your endocrinologist has to say about your parathyroid. I hope it's going to be good news for you. Thank you!
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2 ReactionsI do P.T. now.
My Endocrinologist wants to put Evenity on hold until the Reclast is up in December. I will know better in December.
I hope you find the PT helpful.
yes, I have been in P.T. for 29+ years on & off.
It has saved my life!!!
Thank you!
I have been on Evenity for a year and have DEXA scan scores from before and after.
Current Lumbar Spine is -1.3 Prior Lumbar Spine was -2.0
Current Femoral Neck is -2.2 Prior Femoral Neck was -2.7
Current Total Hip is -2.1 Prior Total Hip is -2.1 (unchanged)
Even though the prior femoral neck score was a -2.7 and not all that bad from the scores I have read on these postings, a year ago my thigh bone broke just above the knee while walking.
The new scores move me back into osteopenia. Now the goal is to maintain the bone density I have gained. With agreement from my endocrinologist I am going on Evista. I am not able to tolerate bisphosphonates and Prolia is also not an option for me. In addition to Evista, supplements for bone health and exercises continue. I don't ever want to break another bone.
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5 ReactionsMy feelings as well, @bridget77
Have you received scan and did your numbers improve?
@lbmorgan that is such a strange story. Your spine and total hip scores were not even osteoporotic! And my report says that the femur neck score is not reliable for measuring change, not sure why. My femoral neck is always the worst and I suspect some sort of erosive arthritis is wearing bone down and throwing it off-?
Did your doctor have any explanation for your fracture above the knee? Good luck!
I read somewhere recently that people with osteopenia have the highest number of fractures but people with osteoporosis have the highest rate.