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Epstein-Barr Treatment for Long Covid?
First, a little background: I'm 9 months in to Long Covid and just ended a treatment regimen designed by the InCellDx / Innovative Bioanalysis research group (Dr. Patterson et al). After 4 months of many medications that produced no results and only decreased my quality of life with side effects, I'm calling it. The only medication that improved my functioning was Ivermectin (which did so dramatically), but even that has plateaued for several months now. I'm now waiting until the end of October to be seen at Stanford's Post-Acute Covid Syndrome clinic and have little to no hope for that either.
The only explanation for my Long-Covid that has ever made sense to me is the theory that the virus re-activates latent Epstein-Barr in the blood. I had a very bad case of mono from age 15-17 that absolutely wrecked me, and some of my covid symptoms resemble my experience of mono, so this theory makes sense to me. For those of you who resonate with this theory and are seeking / have found treatment based on this assumption, what are you doing for treatment? Are you being prescribed medications, infusions, etc? I would be so grateful to hear about anything you may be doing or may have heard others are doing. Thank you!
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The Facebook group is Neuro V Long-Haulers. I'm so sorry you are so badly affected. I also had post-exertional malaise when my neurological symptoms were peaking. But the worst of the PEM only lasted about 6 weeks.
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2 ReactionsI am glad to help, please keep us posted. By the way, I also take an antidepressant for the profuse perspiration.
I really hope you find the help you need.
The helping spirit of this group and of you, especially, feeds my spirit. Compared to where I was at the peak of all negative vaccine side effects, so much has improved, but I am left with this last challenge, like a black hole that used to be high energy. Good to hear that you made your way through this phase back to normal. The alternative would have been the loss of your inner fire, a really grim sentence for a younger person. Although basically energy depleted, I am making tiny gains. At first I had trouble holding my head up in bed. There is also slow ongoing gut healing. Your antidepressant may have helped with moe than sweat. I have found that any stress knocks me down and eradicates energy gains. I will update the effects of the supplements when I begin your protocol. Blessings.
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1 ReactionI posted two requests to join the Neuro V Long-Haulers, and am curious how you found/and or joined the group. My requests are just hanging in nonrelevant places and so [ am concerned they will be missed. Being bedridden for months is the pits. Thank you for the group information and your kind encouragement.
Generally a coordinator reads all incoming mail and will let you know if she or he has moved it to the appropriate place.
I have not joined the FB page. But will have to check it out.
'How do I send a mail request to the coordinator? Will my simple statememt on personal page and another on the news page;
"I would like to join the Neuro V Long-Haulers" Would this be sufficient? I'm not very tech savvy. Thank you.
The most insight Drs. I have found for this subject matter is at Nova Southeastern University-Institute for Neuro-Immune Medicine. Please call 954-262-2850.
I met with Violetta Renesca.
Hope they can help.
Perhaps on this venue you can address it to the attention of a coordinator.
Not very tech savvy either
I’ve read the same about reactivated EBV. I think I have that going on as a well post-Covid. Unfortunately none of my doctors are familiar. I had a positive early antigen test in March. I’ve read people having success with symptom relief from antivirals. Please keep me posted if you find any answers.
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