I’ve been to 19 different dermatologists since 1975., including an intern study in 1976, wherein I was examined by six different dermatology interns. Through this time it became obvious that some of these doctors were quite hesitant to offer a diagnosis…even experienced practitioners. One long-established dermatologist actually told me, “I can’t tell you what it is, but I can tell you what it isn’t. It’s not dangerous, it’s not contagious, and it’s not cancer.”

The only “expert” that was confident of his immediate diagnosis was the one who brought in the six interns in 1976. He identified it as Darier's Disease and then biopsed. The biopsy came back from NYU pronouncing it as most likely Grover’s, since Darier's is hereditary, and there was no history in my family. And Darier’s is progressive, whereas Grover’s is transient.

I’ve put up with this most of my life, and the one thing I will not do is put a lot of faith in a doctor that seems cock-sure of what this is or how to treat it. Although I do not put myself in the same category as a medical professional, I believe my 47 years experience with Grover’s give me some credibility, especially since most doctors I’ve consulted have nowhere near my experience with this disease.