Epstein-Barr Treatment for Long Covid?

Posted by snakexeyes @snakexeyes, Jul 28, 2022

First, a little background: I'm 9 months in to Long Covid and just ended a treatment regimen designed by the InCellDx / Innovative Bioanalysis research group (Dr. Patterson et al). After 4 months of many medications that produced no results and only decreased my quality of life with side effects, I'm calling it. The only medication that improved my functioning was Ivermectin (which did so dramatically), but even that has plateaued for several months now. I'm now waiting until the end of October to be seen at Stanford's Post-Acute Covid Syndrome clinic and have little to no hope for that either.

The only explanation for my Long-Covid that has ever made sense to me is the theory that the virus re-activates latent Epstein-Barr in the blood. I had a very bad case of mono from age 15-17 that absolutely wrecked me, and some of my covid symptoms resemble my experience of mono, so this theory makes sense to me. For those of you who resonate with this theory and are seeking / have found treatment based on this assumption, what are you doing for treatment? Are you being prescribed medications, infusions, etc? I would be so grateful to hear about anything you may be doing or may have heard others are doing. Thank you!

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

I am a Covid vaccine neurological Long-Hauler. We resemble Covid Long-Haulers. The Danish physician who is helping our Facebook group prescribes EBV antivirals for those with a history of EBV. There is evidence that the immune dysregulation after Covid or the vaccines can allow reactivation of dormant EBV.

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@gillysmom

Please describe what has helped your fatigue and breathlessness. I have both have not been successfully treated for either. Thank you.

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I am taking supplements that have been prescribed for me by the nurse practitioner at the Doctors office. This M D also practices functional medicine. It’s a 9 week cycle with only 2 different supplements in each cycle. I am in week 7 and will do another cycle when week 9 ends

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@frking

I am taking supplements that have been prescribed for me by the nurse practitioner at the Doctors office. This M D also practices functional medicine. It’s a 9 week cycle with only 2 different supplements in each cycle. I am in week 7 and will do another cycle when week 9 ends

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Would you be willing to name the supplements in the cycles? I am almost a year ill post Moderna vax) with no MD recommendations and I would be thankful for some relief. Thank you in advance for any suggestions.

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@frking

I am seeing a functional medicine doctor. Although I have never had mono, I am being treated as they would for Epstein Barr. The supplements have erased my fatigue and breathlessness. My other issues are improving.
I suppose you can say I had a serious case. The admitting doctor at the emergency room gave me little hope of surviving because I also had pneumonia. I couldn't believe he said that to me. I was hospitalized for three weeks, back in Oct. and again in February, where the only reason for my illness then was that I had Long Covid.
If you choose to see a functional medicine doctor, be sure he is also a MD and not someone in the medical field who is practcing this modality as a supplement to their business. I went that route some years back and he gave everyone the same supplements etc. He was not an MD. Good Luck to everyone.

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Please share your list of supplements! Many of us are desperate for relief, and we need all the help and suggestions we can get. So far no doctor has been able to help me at all, and believe me, I have tried and tried - for three years. That’s why I continue to read these posts faithfully, every day. Hoping someone else has found some answers, when I have not been so lucky.

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@pacer3702

I am a Covid vaccine neurological Long-Hauler. We resemble Covid Long-Haulers. The Danish physician who is helping our Facebook group prescribes EBV antivirals for those with a history of EBV. There is evidence that the immune dysregulation after Covid or the vaccines can allow reactivation of dormant EBV.

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Finding your post is my lucky day. Today I decided I fit the EBV model of Moderna vax injured, so would like to join the Fb group. So far, nothing has helped my incredible post Moderna malaise, Hope an anti-viral will. I've been bedridden fi 9 months. All the best to you.

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@pacer3702

I am a Covid vaccine neurological Long-Hauler. We resemble Covid Long-Haulers. The Danish physician who is helping our Facebook group prescribes EBV antivirals for those with a history of EBV. There is evidence that the immune dysregulation after Covid or the vaccines can allow reactivation of dormant EBV.

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How did you get into thr Fb EBV group? Thank you for any advice or help. I am a Fb member and have posted the request in the eop row post, but that doesn't seem right,

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I am not sure if the supplements advised for me would work for you, but you are welcome to try .
For three weeks I took 60 mg of oil of oregano and 500 mg of
L Lysine. I could not find 100 mg of the oregano as advised. The second three weeks it was Olive leaf extract 500 mg and the L Lysine. The third three weeks it’s 500 mg of Andrographis and the L Lysine . Everything is twice a day. Then start all over for another round of the three weeks each. I know it sounds too simple, but it is working for me. Wishing you success

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@gillysmom

Would you be willing to name the supplements in the cycles? I am almost a year ill post Moderna vax) with no MD recommendations and I would be thankful for some relief. Thank you in advance for any suggestions.

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I have responded with the supplements. Perhaps it takes a day or so to be posted? If I don't see my reply, I will repost

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THANK YOU FOR YOUR EFFORT with posting the supplements. I'm still trying to find my way into the facebook group EBV, I'm not sure where to post my request. Looking. Have you been helped by the EBV supplements? I just joined an EPV research group oriented to finding working solutions for this disease. People with EPV diagnoses fill out a detailed short questionnaire and can opt to share their stories and the group sponsors will eventuually process the results publishing those that are working best. If you are interested, I can look up the contact info.

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@frking

I have responded with the supplements. Perhaps it takes a day or so to be posted? If I don't see my reply, I will repost

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Just finished ordering all the supplements you are taking. I very much appreciate the opportunity to piggy back on your experience and hope for some benefit. I reached the limit of what I knew a few months ago, and have not made real gains in healing since then, so your experiences have renewed my hope. Thank you for your kind wishes, and I hope you continue your progress and are fully recovered soon.

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