Hello, My name is Tommy. I'm hoping I'm not too late to talk about this. I'm just struggling with pain management. I was born with a rare kidney/liver disease (ARPKD, CHF) I've undergone 3 kidney transplants in my life and at the same time as the 3rd I got a new liver as well, as well as a combined total of 10 years on hemodialysis. after losing my 2nd transplant to Pnumonia I went back on dialysis and it ended up really worsening my bone diseases (Osteoporosis, osteopenia, osteomalacia) Which is where 95% of my pain comes from, I also have a ton of immflamation pain in my entire back. Prior to my 2nd transplant failing I was on zero pain meds and walking at least 5 miles a day. After losing it my mobility slowly declined as the pain got worse from my bones getting worse from dialysis. A couple of my fingers started to club and now I can barely walk far at all. Usually the most I can do is getting dropped off at the front enterance at a doctors office and walk to the reception and to the paitent room and back to the car will do me in for the rest of the day. I'm on a very high dose of Oxycodone (60mg /day), My GP sent me to Pain Management and PM initially wanted to start me on Medical Marijuana and to slowly taper down my Oxy dose until I can safely get off (Which I want 100% I hate being on Opiates) I live in Western NY but had my most recent double transplant out at Cleveland Clinic beccause they were one of the only hospitals that would take on a patient that already had 2 transplants and was in as bad of a shape as I was. PM called Cleveland and they told PM that Medical Marijuana and CBD aren't an option. So I literally have no idea what to do, the Opiates work but I hate being on them and I know they are damaging my new kidney/liver. I feel like I'm backed into a corner with no options. I hate the Opiates but w/o them I can barely move/walk/do every day things like shower. I've been a guitar player since I was 10 (33 now) and can't play w/o my maeds because the bone disease is so bad just making a fist cause a lot of pain. I guess I'm just reaching out to try to see if anyone has any kind of solution or answers or if a doctor reads this has any ideas. I am perfectly fine finding a new hospital if that's what it takes. Thank you and feel free to ask me any questions.