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Polycythemia: Primary or Secondary?

Blood Cancers & Disorders | Last Active: May 12, 2023 | Replies (29)

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@mattymatilda

Hi Buckaroobanzi!

Thanks for responding. No, I have never heard of anyone with polycythemia AND anemia. Interestingly, when I went to get a second opinion, the hematologist immediately said "you can't have polycythemia and anemia, its impossible". Here we are months later and she now agrees with the original diagnosis. At times my iron goes down to 7 -11. It was good on last lab (84). That's about 50% on scale. Iron saturation always low. between 18 - 30.
Both drs told me to never take any iron pills. My hematocrit on this most recent test is at 49.2. It has been a bit over 50 prior. She said she's not going to treat until it gets to 52. It has risen EVERY lab test I've received since mid January. Sometimes a little sometimes more. But always higher than previous test. Hemoglobin fluctuates but ALWAYS high.
I really appreciate your input and or thoughts. I'm not sure what I have or where to go or should I just do nothing. I uploaded picture of last lab.

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Replies to "Hi Buckaroobanzi! Thanks for responding. No, I have never heard of anyone with polycythemia AND anemia...."

Hi Just curious. I was diagnosed with Polycythemia and my father and I both have Thalassemia minor ... a different kind of anemia. Iron, I was told is not a positive thing for Thalassemia. Is that an anemia possibility for you? Please forgive me, I'm new to the polycythemia diagnosis and admittedly am ignorant about this whole process. So many questions. Thank you for sharing your experiences and being so helpful to this newbie.