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Lymphedema in the neck after laryngectomy

Head & Neck Cancer | Last Active: Sep 8, 2022 | Replies (26)

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@stephanie101

thank you so much for validating everything that we feel also. These Doctors just don't understand or get it! and his ENT told him to NOT loosen the strap to where the trach will move around causing more issues for him. Well it's hard when you can't breathe buddy! Yes, whatever it takes we are getting this trach reversed. I do massage him in the nighttime. and that seems to help and calm his breathing. And it is ALL a catch 22 with all of it. thank you so much and still trying to keep it positive.

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Replies to "thank you so much for validating everything that we feel also. These Doctors just don't understand..."

Stephanie,
At age 63, I just thank God for each day. I know there is a realm awaiting us all, and we will be graded upon this "test." Out here, so many people in their 30s have died from cancer. One-woman in her 30s with five younger children. One day she found a lump, six months later she was gone from this life. I sincerely hope and pray your guy gets the tube removed. One thing is sure, he won the lottery-of-life when he met you!