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MGUS with Polycythemia Vera (PV)

Blood Cancers & Disorders | Last Active: May 6, 2023 | Replies (38)
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@fishergramma

I have had MGUS, then smouldering myeloma since 2013 with very small increases. 2 years ago I found out I now have polycythemia vera. I am watch and wait on the myeloma but have labs often and take Hydroxyurea for the pv. Pv is an amyloid problem and myeloma is a myeloid problem, both in bone marrow but unrelated. Aren't we special?

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Replies to "I have had MGUS, then smouldering myeloma since 2013 with very small increases. 2 years ago..."
Lori, Volunteer Mentor | @loribmt | Sep 7, 2022

Hi @fishergramma Welcome to Mayo Connect and thank you for sharing your personal experience with MGUS, MM and Polycythemia Vera. Your comment at the end about ‘Aren’t we special?” made me chuckle. I don’t like being that special and I’m sure you don’t either, with bone marrow issues being our claim to fame. 😅
As you can see you’re not alone. We have several members experiencing similar blood disorders so I hope you’ll take the time to look through other discussions that might be of interest to you. Just type in the search box at the top of the page with any of the 3 health topics you have and it will give you a listing of the conversations.
Were you looking for anything in particular that brought you to Connect?

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