Dealing with long COVID and COVID pneumonia

Posted by ineedanswers38 @ineedanswers38, Jan 24, 2022

Hello everyone, so I started feeling sick around dec 16th, self quarantined until the 22nd only to test positive for covid it’s been a rollercoaster since then. I ended up in the er on dec 31st due to shortness of breath, back and chest pain ( I am vaccinated as well) after a chest x ray I was told I had a mild case of covid in my lungs but not to worry so they sent me home with prednisone, and albuterol inhaler. FF to Jan 8th I woke up and couldn’t take a deep breath with chest and back pain and after using the inhaler and taking a nebulizer treatment and neither worked I ended up back in the er where once again I received a chest x ray, prednisone and ketorolac for pain/inflammation. This time the dr told me that I had pneumonia in my lungs but it was still mild and sent me home with the same scripts as before. I tested positive on the 22nd of dec, the 31st and Jan 6th. Since then I’ve had diarrhea at least twice a week accompanied by slight headaches and my insides are shaky some days. I’m really at a lost and don’t know what to do. Can anyone give me some insight on this please and thank you.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@colleenyoung

Hi Joyce and welcome. Several members are talking aout covid pnuemonia and oxygen. I moved your post to this existing discussion:
- Dealing with long COVID and COVID pneumonia https://connect.mayoclinic.org/discussion/long-covid-covid-pneumonia/

I did this so you can connect with @auntb65 as well as members like @ineedanswers38 @susie333 @ac56 @covid2019 @dvierheller @batessa21

You may also be interested in these related discussions:
- Post COVID pneumonia on oxygen at home. How long does O2 weaning take? https://connect.mayoclinic.org/discussion/home-oxygen-post-covid-pneumonia/
- Post-Covid "Organizing" Pneumonia / Long Term Complications https://connect.mayoclinic.org/discussion/post-covid-organizing-pneumonia-long-term-complications/

I'll be very interested to hear what you learn at your upcoming appointment at Mayo Clinic. Do you have to fly to Mayo or will you be driving?

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Thank you all the help you have offered! I have to wait til mid October for my Mayo appointments. Until then I’ll look into the information you gave me. I’m excited to read it!

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@colleenyoung

Hi Joyce and welcome. Several members are talking aout covid pnuemonia and oxygen. I moved your post to this existing discussion:
- Dealing with long COVID and COVID pneumonia https://connect.mayoclinic.org/discussion/long-covid-covid-pneumonia/

I did this so you can connect with @auntb65 as well as members like @ineedanswers38 @susie333 @ac56 @covid2019 @dvierheller @batessa21

You may also be interested in these related discussions:
- Post COVID pneumonia on oxygen at home. How long does O2 weaning take? https://connect.mayoclinic.org/discussion/home-oxygen-post-covid-pneumonia/
- Post-Covid "Organizing" Pneumonia / Long Term Complications https://connect.mayoclinic.org/discussion/post-covid-organizing-pneumonia-long-term-complications/

I'll be very interested to hear what you learn at your upcoming appointment at Mayo Clinic. Do you have to fly to Mayo or will you be driving?

Jump to this post

We are fortunate to be 1 1/2 hour from Mayo by car.

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I caught COVID pneumonia in 2021 and was hospitalized then again 6 months later but that time it wasn’t bad then again later and now again. I feel so tired and weak. I went to the er they tested me and this was Wednesday and told me I could go back to work on Monday. Right now I’m wondering how cause I hurt all over and I’m extremely exhausted and winded. My job is irritated with me cause I’m out but I did ask to be sick.

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I wish I new what to tell you but I don’t I’m struggling with this constantly also. I think they should keep u in the hospital til the pneumonia clears up. Find a pulmonologist when u can also

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By the way I was told by a Dr at the Er coronavirus and COVID are different I had no idea but since I’ve had both in the last month I could tell them they are exactly the same with symptoms and body aches and fever. Scientists/and doctors don’t know how it feels unless they had it well I did I have the paperwork to prove it along with RSV and its extremely exhausting and miserable and my body is tired and I want to get well

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