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MGUS: Please, let me know I not alone

Blood Cancers & Disorders | Last Active: Jun 3, 2023 | Replies (144)

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@momofthree1

I am sorry, I just saw your post . I know your pain as we are now five years into this and nothing is headed up on the scale of good vs bad. Best of luck to you and yours

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Replies to "I am sorry, I just saw your post . I know your pain as we are..."

Does anyone take Actonel? I'm wondering if anyone has experienced side effects? I'm back on it for last 6 mos. I was taken off for over 2 yrs due to extremely itchy rashes. Now I'm high risk for fractures. My endo told me mgus may be a contributor. I noticed since I'm back on, the itchy skin, and slight rash is acting up. But worse, I'm getting sweats 24/7, and bad hip, and back pain. Im trying to take a 30 min walk , but gosh, soooo achy in hips, and back, I can't wait to get back home. Im going off this med and doing the natural route...supplements, exercise, good bone diet. I'm even
Making a bone broth, for added collagen, and amino acids, as well as some calcium in there. Please share if you heard of these side effects.

@dazlin,

If you don't mind me asking, are you taking actonel because of osteoporosis? If so, I think you may be interested in the following discussions focused on osteoporosis and the treatment and side-effects:

- Treating osteoporosis, https://connect.mayoclinic.org/discussion/hi-im-new-to-the-site-and-am-interested-in-treating-osteoperosis/
- Side effects of bisphosphonates, https://connect.mayoclinic.org/discussion/side-effects-of-bisphosphonates/

Each of these discussions has members that have discussed actonel and its side-effects.

Yes Justin, I'm on it for osteoporosis, MGUS being a contributor. I'll check out that link you sent, THANKS!!