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← Return to Transplant: BK Virus
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@hello1234, When I tested positive for BK virus, my meds were: Tacrolimus 5 mg a.m. and 4 mg. pm., 5 mg. Prednisone and Myfortic or Mychopenolic 360 mg a.m. and 360 mg. p.m. On 5/27/22, the BK virus result was 2,231 copies. My doctor ordered to completely stop the Myfortic. On 6/13/22 lab result, it was really alarming that the number nearly doubled to 5,200 copies after stopping the med. for two weeks. Thankfully 🙏🏼, the numbers declined in every two weeks of testing. On 8/12/22, it was finally negative, and I was put back on Myfortic for the same dosage. I hope and pray that it doesn’t come back although I know most likely it will. My GFR and creatinine levels were good and normal during these periods when BK virus was present.
I hope it goes well for you. Everyday is a journey, and I always pray that we overcome the challenges we face.
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Hi @leahdrose 😊
You have no idea how happy you just made me! When I saw your message come through and read it, I said thank goodness for Leah. ❤
I have been so upset by this BK virus diagnosis and now the "double" viral increase. Your message that you experienced the same double viral increase is unbelievably comforting!
My Cellcept (MMF) was reduced to 250mg, it has not been completely stopped yet.
I assume that will be the next step if the viral load doesn't come down and then they will add 5mg Prednisone to cover the removal of Cellcept in addition to my Tacronlimis. Do you have any issues with Prednisone? (I have no experience with it.)
My local nephrologist was surprised that my Tacronlimis was not reduced. Did your doctor explain why they removed the Myfortic instead of reducing the Tacronlimis? I am curious too how they choose which immune suppression to remove.
I would love a reduction of Tacronlimis. I think it's giving me brain fog in addition to the significant hair loss. Was your blood target range for Tacronlimis held at 6 to 8 during your BK and after?
THANK YOU again Leah for jumping in to help me! It means the world to hear your experience since it's very similar to mine and ultimately worked out to be "negative" with no damage to your GFR.