MUSC Patient and Family Virtual Conference on September 9th

Before you get totally into holiday weekend mode, let me alert you to a patient conference. The conference called “2022 Update on NTM Infections Patient and Family Session” will be sponsored by the Medical University of South Carolina (MUSC) on Friday, September 9th. It will be both an in-person and virtual conference and they have extended the sign-up period to next Wednesday the 7th. Best of all, it will be led by the highly regarded Dr Patrick Flume and it is FREE!!!

Dr Flume is an expert in Cystic Fibrosis, Bronchiectasis and NTM Lung Disease. He is frequently cited for suggesting that bronchiectasis is not just a cycle of airway dysfunction, inflammation, infection and structural damage, but rather a vortex. His model acknowledges the interconnectedness of all the characteristics of BE and the complexity of the disease.

The MUSC NTM team will discuss different aspects of care ranging from diagnostic testing, treatment and monitoring, and review opportunities for advocacy and clinical research. The MUSC NTM team consists of pulmonary and infectious disease clinicians, nursing, respiratory therapy, pharmacy and psychology who work together to address the needs of those affected by NTM infections. (paraphased from the MUSC website)

To sign up, go to https://bit.ly/3Q5oBk9 and select the “online registration portal” on the left. You will have to register as a medical professional so select “Other” and “Patient Advocacy” as your specialty. (I confirmed this with the office overseeing registration)

This event is not expected to be recorded.

Thank you To bronchi-sister L from South Carolina for letting us know about this fantastic learning opportunity!

Enjoy the Labor Day weekend and reward yourself for all the hard work you put into managing your disease.

Best,

Linda Esposito, MPH