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Grover's Disease: What works to help find relief?

Skin Health | Last Active: 3 days ago | Replies (1943)
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@jo2468

This LP is a full body problem and we have no control! One doctor dismissed me by saying "That it usually goes to cancer", and left the room with no further details. Do you know anything about what he said? Next appt I will talk with my new doctor. Sounds like you've been dealing with LP for a long time and I am sorry to bring it all up. I've been diagnosed only since January t

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jo2468 | @jo2468 | Sep 2, 2022

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bustrbrwn22 | @bustrbrwn22 | Sep 2, 2022

Hi @jo2468. The statement about cancer is absolutely not true. I have read many abstracts on all types of LP and from what I’ve read here’s the deal:
Chronic oral LP can turn to cancer but that is very rare.
Ocular LP can cause blindness. I haven’t seen a good abstract on the occurrence. I have ocular LP so I am very concerned about this. From studies with actual numbers, those diagnosed with ocular LP go blind within a year. My interpretation is that it probably isn’t common so if I were going to go blind I would have already. Although hydroxychloroquine, the usual first medication go-to when people cannot keep their LP under control using steroid creams on spots, can cause blindness but that typically happens after 10 years of being on hydroxychloroquine.
Otic LP can cause hearing loss. Very rare occurrence.
LP of the scalp (lichen planopilaris) can cause hair loss.
My first dermatologist told me to stop being such a baby and that he had an 80 year old patient that was dealing with it better than me. That 80 year old did not have LP in as diverse areas as I have.

Was your doctor a dermatologist? May I ask where your LP is?

Hang in there we support you!

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