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Hemochromatosis: How do you deal with extreme itchiness?

Skin Health | Last Active: Oct 27 5:39pm | Replies (20)
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@colleenyoung

SWhitman, allow me to bring some other members into the discussion who have experience with hemochromatosis like @dazlin @lclark918 @martymac and who may be able to offer their thoughts if they experienced itchiness and if lowering ferritin helped.

You'll noticed that I modified the title of your discussion to be more topic specific and added it to the Blood Disorders group as well here: https://connect.mayoclinic.org/group/blood-cancers-disorders/

I hope the steroid and Claritin help. It would be helpful to understand the underlying cause too.

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Replies to "SWhitman, allow me to bring some other members into the discussion who have experience with hemochromatosis..."
lclark918 | @lclark918 | Sep 1, 2022

I’m sorry to hear about your mom’s problems with itching. I’ve had some issues with itching as well, being newly diagnosed with hemochromatosis I never knew why I had so many rashes. I was always diagnosed with hives or the doctor suspected an allergic reaction. I do my phlebotomy every 54 days and it’s coming down, hoping to be able to stop soon or at least have a longer break. I just received test results back indicating another issue. Unsure if your mom has the same issue. I’m going to post results hoping it’s allowed on this site. I don’t know what these results mean but would like clarification if anyone has this issue along with the hemochromatosis or if it’s related in any way. My test results are as follows:
Elect Interp
Your Value
Indication: Monoclonal protein
Altered migration and/or decreased level of
alpha-1 antitrypsin(AAT):
The AT band exhibits altered migration
and/or quantitative AT levels are
decreased. This is suggestive of a variant
form of AT. AAT variants are genetically
determined and can be associated with lung
and liver injury. In view of the possible
clinical consequences and the implications
for family members, AT phenotype analysis
is suggested.
Has anyone had this with hemochromatosis or does it go along with having hemochromatosis?

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