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Hemochromatosis: How do you deal with extreme itchiness?

Skin Health | Last Active: Oct 27 5:39pm | Replies (20)

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@swhitman410

She has been being treated for about a year, however she moved states to be closer to me. Her new doctor doing her phlebotomies doesn't really consider her itchiness part of her hemochromatosis but he has ordered a steroid and Claritin that we will start today. I was just wanting to know if others have had the itchiness and did lowering the ferritin help at all? Thanks for replying to my message.

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Replies to "She has been being treated for about a year, however she moved states to be closer..."

SWhitman, allow me to bring some other members into the discussion who have experience with hemochromatosis like @dazlin @lclark918 @martymac and who may be able to offer their thoughts if they experienced itchiness and if lowering ferritin helped.

You'll noticed that I modified the title of your discussion to be more topic specific and added it to the Blood Disorders group as well here: https://connect.mayoclinic.org/group/blood-cancers-disorders/

I hope the steroid and Claritin help. It would be helpful to understand the underlying cause too.

@swhitman410 Has she had her liver tested? Liver problems can cause itchiness.