Complex regional pain syndrome (CRPS) and feeling blank
Hey everyone was diagnosed with crps in April 2022 after a trimalleolar ankle fracture and distal radius fracture Jan 2 2022 I have been taking gabapentin 1800mg a day and I feel like it's done nothing this condition is absolutely the worst thing I've ever experienced I cant sleep I don't have any interest in anything most days and the rare day I have a but of energy it's gets zapped pretty quick I have burning in both legs lower back and whole arm to neck scheduled for nerve abalation and epidural in a few weeks I just want to see if anyone here is going through this o am so lost right now
Interested in more discussions like this? Go to the Chronic Pain Support Group.
They have a news letter that is inspiring and also a FB interview with different doctors that is live and can be sent to your full screen TV.
I have been blessed with doctors that are educated concerning CRPS/RSD. Most orthopedics and Podiatrist are.
I will be going to Rochester, MN. My appointment was moved up to 9/22…Yay!!
Thank you so much. I’m looking forward to finally going to Mayo. I hope for the best to you!
Hello @paulieoneill4979 How have you been doing since we last connected and you made this post?
I can only speak for myself regarding your questions about anger, anxiety and depression. You are not alone, my friend. When I was in the thick of major life changes due to evolving disabilities, I went through about 3 years of these emotions among many others. Think about what it is that you're actually dealing with and going through, it's not easy. Noone expects you to be the hero and handle it with ease all the time, you are bound to have emotionally distressed days and that's ok.
Cognitive behavioral therapy helped me sort through piles of emotions from anger to loss and even jealousy. It provided tools for stress relief and coping mechanisms. I tried to handle things on my own for far too long and it made matters worse, not only on myself but my family too.
Journaling is a great tool to get those emotions out of your head and on to paper. Have you ever tried journaling?
What?! 9/22 🤩 That's awesome!!
Good things happen on that day (it's my son's birthday) and has always been lucky for us. It's right around the corner now. Good for you. I can't wait to hear back on how things go. Positive vibes coming your way...
Hey thanks for reaching out I have been pretty much in pain for the last 4 days as I've been going through a crps flare up I seen my pain management team today and got another shot as the 1st one did nothing several weeks back feel a whole lot wiped out today
I start to video journal since my memory loss has taken my ability to write; the problem is the are not private my wife could hear me and would get mad at my emotions and thoughts so I stop the vide journal. The video journal was going to be use for me to look back at my life and create new memories of what I have accomplished after this disease started.
I hope the next shot gives you better relief.
@gcranor Hi there - I think video journaling is a wonderful idea, especially for memory loss. Understandably it's not as private when your wife can hear and take offense. Does asking her for privacy not work? Is she ever out of the house for you to have privacy? Are you able to go outside and video journal, perhaps on a walk in a quiet space or in your yard or a park?
Do you have CRPS as well @gcranor? How you do you handle your flares?
Aww, thank you!! And Happy Birthday to your son. I’m trying to stay positive 🙂