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Mast Cell Activation Syndrome: What treatments help you?

Blood Cancers & Disorders | Last Active: Mar 18 7:20pm | Replies (30)
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@kurtg

I have a suspected case and have had two major episodes. Just to be clear, this is different than mastocytosis.

I'm curious if Mayo has any resources around this disorder as it's very common as secondary or follow-on to Covid probably partially explains Long Covid.

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Replies to "I have a suspected case and have had two major episodes. Just to be clear, this..."
Colleen Young, Connect Director | @colleenyoung | Aug 26, 2022

Hi Kurt, and welcome. I moved your post to this existing discussion about mast cell activation syndrome (MCAS):
- Mast Cell Activation Syndrome: What treatments help you? https://connect.mayoclinic.org/discussion/mast-cell-activation-syndrome/

I did this so you can connect with other members like @rhawk314 @juy77 @frenchie333 @hsminc.

For people trying to understand the difference and the relationship between MCAS and mastocytosis, I found this article from the Mast Cell Disease Society to be helpful.
- Mast Cell Disease: Overview, Diagnosis, Classification https://tmsforacure.org/overview/

Kurt, were your suspected episodes of MCAS linked to a Covid infection? Are you dealing with long Covid?

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