Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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Profile picture for lemartin417 @lemartin417

I have internal vibrations, but I have multiple sclerosis. Mine occur mainly when falling asleep or as I am waking. They’ve also awakened me in the night. From what I have read, they aren’t harmful and may have something to do with the central nervous system. That would make sense in my situation since MS is a central nervous system disorder.

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@lemartin417 Hello there. Thank you for joining the conversation about vibrations and sharing your experience.

You and @irr4et both mention the central nervous system. So true, the CNS is responsible and whether it's MS, CSS, Covid long-haul or other disorders, vibrations are annoying and worrysome, but luckily not harmful.

I have an overactive CNS due to central sensitization and neuropathy. I find progressive muscle relaxation, mindfulness and deep breathing to be helpful. What do you find helpful to get your through vibration flares? Do you use stress-management tools?

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Profile picture for Rachel, Volunteer Mentor @rwinney

@lemartin417 Hello there. Thank you for joining the conversation about vibrations and sharing your experience.

You and @irr4et both mention the central nervous system. So true, the CNS is responsible and whether it's MS, CSS, Covid long-haul or other disorders, vibrations are annoying and worrysome, but luckily not harmful.

I have an overactive CNS due to central sensitization and neuropathy. I find progressive muscle relaxation, mindfulness and deep breathing to be helpful. What do you find helpful to get your through vibration flares? Do you use stress-management tools?

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I am on an anti-seizure medication 75 mgs three times/day and that quiets them. But I don’t recommend that anyone start one of these meds unless they plan to stay on it for life. I believe a Benzodiazapam would reduce them also but they are addictive and not good for the brain if used regularly.

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I just joined this forum so am a little late on commenting, but I have had internal vibrations for 3-4 months. Both my psychiatrist and my primary care physician say it is anxiety. I've seen a neurologist for tests of other types of pain and she didn't even comment on the internal vibrations, but then she doesn't comment on much of anything. I have them pretty much everywhere, but fortunately not all at once. They seem to move around.
I hope you are doing much better with your situation.

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Profile picture for Rachel, Volunteer Mentor @rwinney

@lemartin417 Hello there. Thank you for joining the conversation about vibrations and sharing your experience.

You and @irr4et both mention the central nervous system. So true, the CNS is responsible and whether it's MS, CSS, Covid long-haul or other disorders, vibrations are annoying and worrysome, but luckily not harmful.

I have an overactive CNS due to central sensitization and neuropathy. I find progressive muscle relaxation, mindfulness and deep breathing to be helpful. What do you find helpful to get your through vibration flares? Do you use stress-management tools?

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Normally my internal vibrations don’t last long. I haven’t tried any interventional techniques but may have to if they become longer lasting.

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Profile picture for maggie1960 @maggie1960

I just joined this forum so am a little late on commenting, but I have had internal vibrations for 3-4 months. Both my psychiatrist and my primary care physician say it is anxiety. I've seen a neurologist for tests of other types of pain and she didn't even comment on the internal vibrations, but then she doesn't comment on much of anything. I have them pretty much everywhere, but fortunately not all at once. They seem to move around.
I hope you are doing much better with your situation.

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Hi @maggie1960, welcome to Connect! Im sorry you're experiencing vibrations. Do you think anxiety could be the culprit? Unfortunately, it can cause and/or add to an uptick in the central nervous system resulting in various responses such as internal vibrations/ tremors. Has your neurologist tested for neuropathy? Has any thing been ruled out yet?

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Profile picture for Rachel, Volunteer Mentor @rwinney

Hi @maggie1960, welcome to Connect! Im sorry you're experiencing vibrations. Do you think anxiety could be the culprit? Unfortunately, it can cause and/or add to an uptick in the central nervous system resulting in various responses such as internal vibrations/ tremors. Has your neurologist tested for neuropathy? Has any thing been ruled out yet?

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Hi Rachel,
As I mentioned, both my Primary Care Doctor and my psychiatrist think the vibrations are caused from anxiety. I've recently seen a neurologist for testing for neuropathy and not all the results are in yet. I did ask the neurologist if she thought the internal vibrations could be related but she hasn't given an answer on that. Nothing has been ruled out yet. I am being tested for neuropathy due to strange itching, stinging, and stabbing pains all over my body without any sign of redness of rash. This has gone on for about 10 weeks, but the vibrations started much sooner. Thanks for asking.

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Profile picture for jalco7436 @jalco7436

Karen Fuentes I Karen I was reading ur post I'm not sure the same for 6 months I wake up weather it's 4am or 6 or 7. With a 45 minute shaking inside more like a nervous fast vibration and it suddenly fades I do get a twitch where my thumb connects to my hand here a d there. It's very weird..
Noone can explain it had some mri but nothing... worried

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I have the exact same thing including the hand thing in my left hand.

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Profile picture for maggie1960 @maggie1960

Hi Rachel,
As I mentioned, both my Primary Care Doctor and my psychiatrist think the vibrations are caused from anxiety. I've recently seen a neurologist for testing for neuropathy and not all the results are in yet. I did ask the neurologist if she thought the internal vibrations could be related but she hasn't given an answer on that. Nothing has been ruled out yet. I am being tested for neuropathy due to strange itching, stinging, and stabbing pains all over my body without any sign of redness of rash. This has gone on for about 10 weeks, but the vibrations started much sooner. Thanks for asking.

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@maggie1960 You're welcome.
I'm happy that your on the right track with testing and the beginnings of some answers.

Your symptoms do sound like neuropathy. Did your doctor perform a skin punch biopsy to test for small fiber neuropathy?

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Profile picture for Rachel, Volunteer Mentor @rwinney

@maggie1960 You're welcome.
I'm happy that your on the right track with testing and the beginnings of some answers.

Your symptoms do sound like neuropathy. Did your doctor perform a skin punch biopsy to test for small fiber neuropathy?

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Hi Rachel,
No, she did not do a skin punch biopsy.
She's not great at answering questions or explaining things. In fact, I am in the process of finding a new neurologist.

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I too feel the internal vibration and sometimes my legs feel weak. Some say it is anxiety, but that seems too simple an explanation. It started when I began to experience severe GI problems, before that I did not have it. One GI doctor said visceral hypersensitivity, but what is the treatment? I wish I could get some answers and get rid of this as it is certainly frustrating.

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