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Brain not "showing me" my peripheral vision

Eye Conditions | Last Active: Dec 8 8:32am | Replies (37)

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@88lance

No improvement, things just continue to decline.
I have a MRA scan to check blood flow in my head tomorrow, as well as ultrasound on my neck to check arteries there.

Other than that, even my neuro-Opthalmologist told me he's stumped and doesn't know what else to do.

I asked for a spinal tap, because some of the symptoms add up for something like MS. He told me no.
Asked a few different doctors, all of them refused.
I'm really irritated and, honestly, angry about this at this point, because we have tested so much, except spinal tap. What if it is MS. They are just not going to let me test because "I don't think it is, probably not anyway".

Yea, what if it is, we going to screw around for 6 months until it gets worse and I come back blind?

I see absolutely no reason for refusing to test something that big when there are symptoms for it.

Working on trying to get a referral, if I can't, I'll probably fly back to Mexico and get one done, I have a Neurologist there that doesn't mess around.
Don't really know what else to do at this point. 😔

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Replies to "No improvement, things just continue to decline. I have a MRA scan to check blood flow..."

@88lance I'm checking in to see how you are doing. I know you have not had answers and that is tough to be that patient. Is there anything that brings you peace and joy? Perhaps listening to soothing music?