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Polycythemia vera (PV): Does altitude matter?

Blood Cancers & Disorders | Last Active: May 12, 2023 | Replies (8)
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@bluontene

I’m 71 & now 28 mths PV diagnosed… I’ve been in constant (4wks now) DISCOMFORT (pain) with Spleen & waiting for my Haematologist to respond to the ultrasound, (attached below).
From recent Bloods taken (attached below) my HTC count was up & subsequently had Venesection (VS)… Hoping that the VS may have resolved discomfort!?!? Nope nothing has changed, I’m able to sleep right through, most nights, & as soon as I awake it starts again…
Any comments/discussion points WRT above concerns would be appreciated…tks.

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Replies to "I’m 71 & now 28 mths PV diagnosed… I’ve been in constant (4wks now) DISCOMFORT (pain)..."
Colleen Young, Connect Director | @colleenyoung | Aug 18, 2022

Hi @bluontene, welcome. Please note that the attached reports were removed from your post because they contained your patient medical record number (MRN). Because this is a public forum, it is best to remove all personal identifying information and institution, physician information.

Have you heard from your hematologist in the meantime to help interpret the ultrasound and explain the hematocrit (HCT) levels?

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lavender28 | @lavender28 | May 12, 2023

Have you looked into bio feedback, accupuncture, or vitamin supplements for the pain? Hope thing get better for you :))

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