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Can I expect coordinated care from Post COVID Rehabilitation Program?
Post-COVID Recovery & COVID-19 | Last Active: Aug 20, 2022 | Replies (4)Comment receiving replies
In a Post-CoV-2 Clinic, but Rehabilitation is piece together and I am left to find my on PT specialist for different issues, only referral made was to a Pulmonary Therapy, which is good, but do not listen when concerns are brought up. They response is u have to keep increasing to get better. Different PT's contacted only do certain services and I have been going to 2 different places and getting no where and doesn't seem to be helping. Co-pays and insurance limits getting used up for nothing. Several issues, TMJ , Headaches, Fibro, Copressed cervical vertebrates, carpal tunnel syndrome, undiagnosed arthritis or muscular skeletal issues. In Post-CoV-2 Clinic, but not intergrated. Always told my PCP is to look at big picture!
Replies to "In a Post-CoV-2 Clinic, but Rehabilitation is piece together and I am left to find my..."
I am having issues with my cervical spine, carpel tunnel, muscular and arthritis. Covid is causing so many problems with my body, that it is difficult to perform many tasks.
Hi @feb, I merged your 2 discussions/posts into one discussion called:
- Can I expect coordinated care from Post COVID Rehabilitation Program? https://connect.mayoclinic.org/discussion/post-covid-clinic-service-integration-issues-with-services/
It is really tough when the patient is expected to be the glue between specialties and services, and to make sure everyone is aware of test results, treatments, symptoms etc. As @rsfcowgirl stated, sometimes this role falls to your primary care physician or a case manager, which can help. Many facilities, especially large hospitals and increasingly smaller clinics, use shared digital records like EPIC, which helps. Then there's the Mayo model of fully integrated teams of multiple disciplines. Luckly this model is being adapted more and more.
As you pointed out elsewhere it can really hard to get accepted at a post COVID care clinic (PCCC). Wait times are long and acceptance criteria restricted due to high demand. I believe you had to wait months for your first appointment too.
It must be really hard to coordinate between specialists when you are feeling so terrible. Just one of your conditions would make it challenging. You're dealing with so much.
In this blog post, Dr. Vanichkachorn, medical director of Mayo Clinic's COVID Activity Rehabilitation Program, offers some tips of talking with providers about long COVID. Perhaps there are some pointers here that might help.
– How to effectively talk to your local provider about long COVID https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/how-to-effectively-talk-to-your-local-provider-about-long-covid/
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I understand your frustration. There are licensed nurse who work as Case Managers. They source + coordinate care. They're usually associated with a hospital or home care. The most common coordinator of care I'm familiar with use a Primary Care physician. They're the hub of medical services for a patient. That's a main role for them. Perhaps your PCP can step into a role with your clinic care. He should be receiving updates etc anyway. As standard practice.
I agree that fragmented care and being responsible for identifying appropriate care providers on your own is not a good scenario.
My thought also is to reevaluate the Post COVID Clinic itself. They may not be capable of providing the standards +care you need.
Wishing you the best.