Connect
Anyone taken Evenity (romosozumab) for Osteoporosis?
Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
After the first injection I had a headache and generally did not feeling well for a couple of days. On the advise of the Nurse Practitioner, I took an antihistamine, Zyrtek, an hour before the next injection and daily for a couple of days after the injection. I just had dose #10 and have had no further side effects as long as I take the antihistamine.
-
Like -
Helpful -
Hug
2 ReactionsSo far I had 3 doses of Evenity. I started itching after the first and subsequent infusions. I also had a headache that starts,a couple of days,after the,shots. Some joint pain , fatigue and brain fog as,well that lasts,about a week. I start feeling more like myself after 2,weeks when I have cleared a portion of the drug. The half life is approximately 2weeks, so there is always,some remaining in your system when you get the next dose. I plan to continue as long as I can as long as the side effects don't get worse.
-
Like -
Helpful -
Hug
2 ReactionsMy first 8 treatments with Evenity, I only had moderate flu-like symptoms the day after so I just took it easy. The last two treatments have caused me to be extremely tired and sleepy, so I sleep for extended periods the following day. It is a small price to pay if everything is working. I feel great after that and play ‘catch-up’. Hope all of our experiences have great results.
-
Like -
Helpful -
Hug
5 ReactionsHi @dianeryles, just wanted to make you aware that I moved your post here: Anyone taken Evenity (romosozumab) for Osteoporosis?: https://connect.mayoclinic.org/discussion/evenity-osteoporosis/
So you could connect with all the other members who are or have started Evenity. 🙂
-
Like -
Helpful -
Hug
1 ReactionMy name is Béla, and I’m 85 years of age and in overall good physical health.
I just had my 9th dose of Evenity. Three more months, at the end of November, I will have completed the twelve months of injections before supposedly going on Prolia. I’m concerned about taking Prolia! I have researched its overall effects on the body, and have found mixed reviews. There seem to be many negative reactions as well.
Once on Prolia, I will not be allowed to have any tooth extractions or implants, and that can extend as long as 5 years. Who wants to feel like a prisoner on Prolia?
What does one do if one is on Prolia and needs dental care? If Prolia is temporarily stopped, evidently you lose all the benefits of Evenity AND Prolia.
I wonder if consistent, knowledgable and appropriate weight bearing exercises will be a better choice for me than going on Prolia? Any suggestions?
Any thoughts about this balancing act? It’s confusing about how to prevent further bone loss besides eating lots of greens and exercising…while the fear of breaking bones always lurks in the background. Béla
-
Like -
Helpful -
Hug
5 ReactionsAs it stands, my doctor was recommending Reclast. The results are showing an improvement that is longer lasting. I won’t be revisiting that discussion until November so I will wait and see what is then recommended. I hope things go well.
Did your doctor recommend Reclast after you had been on Evenity for one year? Béla
Yes. Since the recommendation was for next year and I had a whole year to see how I responded to the Evenity, we didn’t get into a lengthy conversation. The research he had been studying reflected positively upon that protocol sequence. But everything is undetermined until I get through the rest of the treatments.
I've read of people on Prolia who were unable to fully avoid some dental work but scheduled it in the last month before the next injection. That is when there is theoretically less Prolia in the system. But I would ask my endocrinologist about this as it's likely a question s/he's had to help patients deal with before and will hear again as more people end up in these drugs.
The other question to ask is why is Prolia the doctor's recommendation over the bisphosponates? There might be a solid reason, but I'd want to know. If you do take Prolia and need to discontinue it, the usual course of action is to switch to a bisphosphonate to protect the bone growth.
-
Like -
Helpful -
Hug
3 ReactionsI would try reclast if I were you. It is only given once a year and if you have issues you won't have to worry about stopping it like prolia.
-
Like -
Helpful -
Hug
1 Reaction