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Ear Tinnitus and Pain with Neuropathy

Posted by cwallen9 @cwallen9, Jan 29, 2019

Does anyone have severe tinnitus and ear pain with their neuropathy? I have small fiber and autonomic neuropathy and I have been getting severe tinnitus (roaring and high pitch noise) and a feeling of pressure and pain for the last month. I am wondering if the neuropathy and/or medications are causing it. I am on gabopentin, cymbalta, and NSAIDS.

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willows | @willows | Aug 6, 2022

I have the same problem and find that Lyrica or pregabalin has been helpful for me.

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bettersleep68 | @bettersleep68 | Aug 8, 2022

I have had tinnitus for over 30 years..have spend money and time with doctors. There is no cure..the ringing will never stop ...you have to just learn to live with it..

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spoon11276 | @spoon11276 | Aug 11, 2022
In reply to @teetee7 "I was wondering if you could share your Autonomic Neuropathy symptoms, just to know if they..." + (show)
@teetee7

I was wondering if you could share your Autonomic Neuropathy symptoms, just to know if they match any of mine? When my tinnitus started roaring and was daily, that is when my body started to go haywire. This was December of 2017, so a little over a year ago. I started to get vertigo/dizziness every day and had my first "fainting to the ground' episode about 3 weeks later. I started to notice that when I had to urinate and was midstream into urinating, the fainting sensation was overwhelming. (I actually blacked out once, into the side of my walk-in bathtub and got a black eye and badly bruised cheekbone). I also started developing temperature control problems - bouts of sweating a lot which then became daily, mostly in the evening. My eyes seem to get out of focus at times and I just feel like I need a tune-up, lol. Weird misfiring sensations, skin sensitivity, etc. I did try taking the Lipiflavanoids for "ringing ears". They seemed to help a little bit with turning the tinnitus sound down, but my stomach became really nauseated after taking them.

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Hi. I think that all your symptoms are the same as minds. I have not past out yet and I’m hoping I never will but they are exactly the same. My doctor had me taking 60 mm of cymbals and I got really dizzy. She told me it would past but it never did. Dizziness and ear ringing does not go Together. What I started doing is drinking hydration water and got off everything except my HBP and my iron pills to see if it would make a difference. I started adding one medication back at a time. So far I’m doing good.

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marymerry | @marymerry | Aug 11, 2022
In reply to @usadavidh "Tried to edit but it was too late, so here is my revised Reply. Thanks for..." + (show)
@usadavidh

Tried to edit but it was too late, so here is my revised Reply. Thanks for the reply, it feels good to be able to vent out without feeling guilty and/or judged. It's been awhile since I've tried any drugs, therefore difficult remembering everything I've tried. The one's I can remember are Doxepin, Gabapentin, Amitriptyline, and I believe Nortriptyline. In short, at the time, I didn't receive any relief whatsoever and actually I wouldn't have known I took anything other than the horrible side effects I experienced, like; Drowsiness, Dizziness, Headache, Blurred-Vision, Dry Mouth , and a consistent Upset stomach. In short, I still had ALL the Neuropathy symptoms but unfortunately with the additional side effects added to my plate. Because, I still try to ride or walk several times a week and when I was on meds I couldn't do any type of exercise from the side effects, especially being sick to my stomach. As I said earlier, I've pretty much lost hope for any relief. For one, because it seems medical scientist out there, don't seem to have many incentives to find any answers. Especially over the last few years, the entire world is focused only on COVID, leaving everyone else to shovel-into the scrap heap of bodies without much empathy towards any long-term outcomes. In northern Michigan where I live, the Hospitals over the past 18 months have been pretty much shutdown for normal activity, and running almost exclusively for treating COVID and seems almost forced into other life emergencies like deliveries, myocardial infarctions and strokes. The bottom line, the medical world is operating with "unorganized chaos" ! And you are definitely right, for any hope we must be our own physicians... That I have .... without any success.

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Thank you for sharing your expertise. I agree that doctors are now so specialized with in their specialty that none of them are wanting to connect the dots.
I have neuropathy that began in my left toe then recently it went to my other foot. Now it is up to my knees and on the move. It has destroyed my gate, and I am now frightened. I also am extremely lightheaded and have been to the best doctors with no prognosis. I was extremely active and it has destroyed my life as I knew it. I have had a slight tinnitus for a long time. And BRVO and DVT. The neuropathy bothers me the most and is rapidly progressing. I never hear of research being done and so many have it??? I had in operable cancer 30 years ago and a lot of radiation, which later gave me cancer. I don’t worry about that, however every doctor I see, says all of my problems are from the radiation I had so long ago. Have you heard of a fund for research to find a cure for neuropathy? I have not. All the best to you.

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nycami | @nycami | Dec 25, 2022

I am in the process of finding out if I have Small Fiber Neuropathy And i wanted to know if tinnitus and ear pain are part of SFN?

I was diagnosed with with Endolymphatic Hydrops in October but i am beginning to question that diagnosis…

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Dec 25, 2022
In reply to @nycami "I am in the process of finding out if I have Small Fiber Neuropathy And i..." + (show)
@nycami

I am in the process of finding out if I have Small Fiber Neuropathy And i wanted to know if tinnitus and ear pain are part of SFN?

I was diagnosed with with Endolymphatic Hydrops in October but i am beginning to question that diagnosis…

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Hello @nycami, Welcome to Connect. You will notice that we moved your post to an existing discussion on the same topic below so that you can read what other members have shared about tinnitus and ear pain with neuropathy.
-- Ear Tinnitus and Pain with Neuropathy: https://connect.mayoclinic.org/discussion/ear-tinnitus-and-pain-with-neuropathy/

There is also another discussion on Endolymphatic Hydrops that you may want to read through.
-- Can endolymphatic (vestibular) hydrops go away?:
https://connect.mayoclinic.org/discussion/vestuiblar-hydrops/

That might be a great question to ask your neurologist to see if they might have any thoughts or answers on a connection with neuropathy. How soon do you have your appointment?

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Mentor
John, Volunteer Mentor | @johnbishop | Dec 26, 2022

Hi @nycami, Thank you for the private message. I thought I would respond in the discussion on Ear Tinnitus and Pain with Neuropathy so that others that are following the discussion may also be able to share their thoughts or suggestions on what has helped them.

To answer your first question, I don't have tinnitus or ear pain along with my small fiber peripheral neuropathy. You mentioned you've had tinnitus for a long time but the ear pain is new. You also mentioned being diagnosed with Meniere’s Disease in October but that you don't believe the diagnosis is correct. I'm not familiar with Meniere's Disease but Mayo Clinic has some information on diagnosis and treatment here - https://www.mayoclinic.org/diseases-conditions/menieres-disease/diagnosis-treatment/drc-20374916.

I know it's frustrating dealing with the ear pain and not having any answers or relief from the pain. @teetee7, @willows, @cwallen9 and others may have some suggestions or experience they can share with you.

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danye1 | @danye1 | Jan 1, 2023
In reply to @marty77 "I had the same ear pain and high pitched white noise in my ears. I have..." + (show)
@marty77

I had the same ear pain and high pitched white noise in my ears. I have SFN as a result of chemo. I take gabapentin, cymbalta, oxycodone, and blood pressure meds. I got where I couldn't stand it anymore and went to an audiologist last fall. She fitted me with hearing aids and tuned them so that the tinnitus is all but gone. It was truly a life saver for me.

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I have Tinnitus, too, and have learned that opioids, many antidepressants and even some blood pressure meds are ototoxic.

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2 replies
rashida | @rashida | Jan 2, 2023
In reply to @bettersleep68 "I have had tinnitus for over 30 years..have spend money and time with doctors. There is..." + (show)
@bettersleep68

I have had tinnitus for over 30 years..have spend money and time with doctors. There is no cure..the ringing will never stop ...you have to just learn to live with it..

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@bettersleep68 I agree. There is no cure. I have had tinnitus for about that long too.

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willows | @willows | Jan 2, 2023
In reply to @danye1 "I have Tinnitus, too, and have learned that opioids, many antidepressants and even some blood pressure..." + (show)
@danye1

I have Tinnitus, too, and have learned that opioids, many antidepressants and even some blood pressure meds are ototoxic.

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Danye1 there are hundreds of medications that potentially can cause tinnitus or exacerbate tinnitus. A lot depends upon the toxicity of the drug (or chemical), the strength of what is prescribed, and the duration it is consumed. The American Tinnitus Association has a reliable list of ototoxic drugs. Also keep in mind that often only a small percentage of people will be negatively impacted by a given drug. I have had tinnitus for 30 years and have found it useful to continually keep up on tinnitus management techniques and on the research that is being done on tinnitus.

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