COVID vaccines and neuropathy

Has your dr recommended evusheld injection of antibodies?

I totally agree. I had an adverse reaction to the first Pfizer vaccine within 15mins, with a cascade of symptoms to follow - brain-fog, tremors, heart/lung pain (lasted 4 days), paresthesia, neuropathy, tinnitus... The tremors and brain-fog got better after 2 months. The paresthesia and neuropathy in my legs/feet, and tinnitus have not gone away - 16months later. Concerned about catching Covid, I got the Novavax jab 5 months ago, which had fewer side-effects (fatigue and heart arrhythmia that lasted a week), but still got Covid 6 weeks ago, which exacerbated the paresthesia and brain-fog, and took 3 weeks for the brain-fog to lift. Even though the Covid was pretty bad, I’d rather have that again than do another vaccine. I think it is just too risky for someone like myself, with these vaccine-induced neurological issues. Until they develop a vaccine without the offending spike, I’ll take my chances…

My PN got considerably worse after second Pfizer. Didn’t have another one after that and frankly what I now know about the MRNA vaccine I won’t go near another one

Has anyone who had a diagnosis of Covid vaccine induced peripheral neuropathy gone on to receive additional Covid shots or boosters? If so, would you share your experience?

I have had PN in both feet, legs and hands since my second Moderna, May2021. I will NOT be getting a booster. I did contract Covid over the 4th of July, as did my husband who did have a 3 rd booster. We were equally sick and he tested positive for days longer than I did even though he was sick for 3 days before I was. I had a terrible flare up of my PN right afterwards, seems to be calming down now. I don’t think it will ever go away, but I’m not taking the chance of having it get worse. 😓

I also have PN in both feet, legs, and partially in my hands since my second Moderna shot as well (same time frame). I also will NOT be getting a booster.

I have seen a neurologist and he has me on 300mg Gabapentin nightly. I cannot tell that it is working at all after being on it for over six months now.

I have added CBD+THC gummies (25mg CBD + 2mg THC) and they help me get the "I'm on fire" down to "Man, this really hurts". I have progressed from a walker to a cane. I am only 56 years old and should NOT need a walker or cane. Before the jabs, I had no neuropathy and no need for a walker or cane.

Did I mention no booster for me?

Have you successfully filed for and been approved for disability with your peripheral neuropathy? I filed back in May and am still waiting for a response, which they said would be 5-6 months after filing (November timeframe).

I never in a million years would have imagined I'd be in this position and need help financially due to vaccine injury. The peripheral neuropathy feels like I am on fire from the inside out. Most days it is unbearable and I end up in tears all while still trying to work and get through the day.

I hope you get the assistance from SS Disability soon. I know you can’t receive it until you’ve been deemed disabled for 6 months. I was devastated to having my career come to an abrupt halt, and put off requesting it for a year in hopes I could shake this thing off and get back some (or all) working ability. But when I applied, it was very smooth; the paperwork, links to doctors and medical records, etc. were all in order; they even paid retroactively for the time I could have been drawing. The amount is insulting compared to what I lost in earnings, but it helps, especially since I had planned to work and continue to save for retirement another 10 years. But, I’m thinking positive, and hope you have a smooth process. It saddens me to hear some folks hire attorneys who take a % of their entitlement from them, when they can apply without them. One thing to note; if you’re disabled from neuropathy to where you can’t work, you don’t need a cause for your neuropathy. My neuropathy cause is not known and it came long before Covid and Covid vaccines. So keep your chin up, I hope the processing time is reasonable given the labor shortages and backlogs in almost everything right now, but I found the process itself fair, though good record keeping helps.

I'm so sorry you are suffering like this. I agree that it's so challenging to work while in pain. I had to take 3 months of partial/full medical leave, but have not applied for disability. By 16 months of disability, I meant 16 months of physical limits and restricted activity. I hope your application for disability will be approved soon!

Thank you.