Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

“VERY WELL MAY BE” helpful if Yours Truly also was able to read as well —
“I CLAIM PAIN”…..

😜😜😜😜😜😜😜😜😜😜

“MUCH OBLIGED” — JON PRESTI

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@amandajro

Hello @calygirl84. I am so sorry to hear of your chronic pain from your varying diagnosis. You will notice that I have moved your post into an existing discussion with others who also have chronic pain so that you may find solace in not being alone. You can find it here: https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/

Members such as @lioness @queenmother56 and @kimmiesue55 have recently shared in this discussion and may be able to come back in to share with you.

Do you feel there is a correlation between your 23 and Me results and your health?

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Yes, I do, I think I have very poor muscular skeletal issues.
I have burnt 🥵 my body out by physically overdoing , my work, and play, everything has been too physically demanding.

So I have had so many multiple surgeries, because I not only have osteoarthritis, fibromyalgia, and aching all the time, but no Rheumatoid arthritis.
I wish I felt better at 65, I am recovering from revision back surgery, that is another big heal.
I do thing genetics 🧬 have to play some part?

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@calygirl84

Yes, I do, I think I have very poor muscular skeletal issues.
I have burnt 🥵 my body out by physically overdoing , my work, and play, everything has been too physically demanding.

So I have had so many multiple surgeries, because I not only have osteoarthritis, fibromyalgia, and aching all the time, but no Rheumatoid arthritis.
I wish I felt better at 65, I am recovering from revision back surgery, that is another big heal.
I do thing genetics 🧬 have to play some part?

Jump to this post

Hello @calygirl84, it's nice to meet you. I'm sorry to learn of your chronic pain and symptoms from various health conditions. I'm wondering if you have ever considered Mayo Clinic's Pain Rehabilitation Center? Given your diagnoses and the fact that you want to feel better at age 65, perhaps the PRC would be a good fit.

Here is more about the program:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
I graduated the Mayo PRC and can attest that it is an amazing life changing opportunity that works with patients on 4 categories - physical, emotional, behavioral and chemical. These 4 areas, fuel the fire of chronic pain. Ultimately the goal is to learn how to cut the fuel lines off.

What do you think? Might it be a program worth looking into?

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@rwinney

Hello @calygirl84, it's nice to meet you. I'm sorry to learn of your chronic pain and symptoms from various health conditions. I'm wondering if you have ever considered Mayo Clinic's Pain Rehabilitation Center? Given your diagnoses and the fact that you want to feel better at age 65, perhaps the PRC would be a good fit.

Here is more about the program:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
I graduated the Mayo PRC and can attest that it is an amazing life changing opportunity that works with patients on 4 categories - physical, emotional, behavioral and chemical. These 4 areas, fuel the fire of chronic pain. Ultimately the goal is to learn how to cut the fuel lines off.

What do you think? Might it be a program worth looking into?

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How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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@schirmeyerk

How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

Jump to this post

Hi @schirmeyerk. I understand your concern about affordability. Are you accepted at Mayo Clinic in MN already?

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@schirmeyerk

How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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@schirmeyerk

Mayo offers charitable housing. Learn more here:
https://www.experiencerochestermn.com/mayo-clinic/hotels/charitable-lodging/
I live in NY and went to Mayo Florida. I'm on Medicare - SS disability and my insurance cocered Mayo. Have you spoke to your insurance company yet about out of network coverage?

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I have a rotator injury right shoulder from golf. I have been using heat pads without much success.
What can I do ?

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@johnlschwartz

I have a rotator injury right shoulder from golf. I have been using heat pads without much success.
What can I do ?

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Hi @johnlschwartz, I'm not sure how long you have been battling the the shoulder injury.
Mayo Clinic has some information on the injury and treatments that may be helpful - https://www.mayoclinic.org/diseases-conditions/rotator-cuff-injury/diagnosis-treatment/drc-20350231
Have you looked into any treatments or physical therapy for your rotator injury?

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@schirmeyerk

How does a person living on Social security afford Mayo. I live in FL but they want me to go to Rochester, MN because of multiple rare disorders.

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Mayo has support programs for people who need financial help. Since they have that as part of their mission, give it a shot to apply. I assume Mayo there in Jacksonville doesn’t think they can handle your issues?

In any case, help is available. Ask for their financial support programs and the residential programs they can recommend—there are places you can stay if you have to go. I went to Mayo in Arizona and they worked with me. I had to stay there for months.

Good luck and blessings for you and yours.

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@johnlschwartz

I have a rotator injury right shoulder from golf. I have been using heat pads without much success.
What can I do ?

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I have a rotator cuff tear plus other problems there (injury) and I used Ice to bed with a contraption sold in cvs where you put the ice pack in it and it wraps around your bad shoulder and keeps the ice in place. I needed help putting it on. The strap wraps around. It was agony until I went to physical therapy for a while and continued to use ice. I would question the use of the heat vs. cold. The cold has a numbing effect which is good to alleviate that pain. I used lidocaine roll on they sell at the pharmacy. I hope you feel better. I need surgery to correct mine. Never got it. Now I have two bad shoulders. The new injury.

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