1. < MAC & Bronchiectasis

N-A-C and apo-Lactoferrin helping MAC and Bronchiectasis

Posted by eileent @eileent, Aug 18, 2019

I've been having great success with taking a couple of supplements for the last 7 months. I wonder if anyone else has tried these particular two supplements regularly over a number of months and found success in that. I have been taking the Apo-Lactoferrin bought through Life Extension once a day and the N-A-C 600mg Sustain by Jarrow for about 7 months now.
I keep getting better and better. My lungs seem stronger though I haven't had them tested and my heavy almost constant chronic cough that I had for a couple of years is pretty much gone. I have a brief few coughs right after extensive exercise that brings up and clears a bit of thick mucus most days that I exercise but it's only for a moment about 10 minutes after an hours worth of exercise. My pulmonary doc appt isn't till October, so I don't have any diagnostic proof without tests to see if I'm rid of the heavy concentration of MAC and Aspergillus that I was diagnosed with after a Bronchcospy in January.
I have not yet taken any antibiotics or medicine for treating the MAC as I wanted to see what I could do on my own. I also use some light saline nasal spray in the mornings. I could be just lucky, but it seems those supplements are doing what some research said they might do and are helping break up the biofilms of the mycobacteria and helping my immune system keep them at bay (or maybe even rid me of them!).
I also take Jarrow Curcumin once a day for good measure to help prevent any possible inflammation for the last 4 months and have been taking 500mg of D3 sublingually but I've taken the D3 for a couple of years, so I think it's been the N-A-C and the app-lactoferrin that's working for me!
Anyone else tried N-A-C in a consistent dosing over a number of months? I think the long-term consistent dosing with the N-A-C supplement is important not just to get at and break up the hard to reach MAC that hides in its biofilms, but to prevent any new NTM from getting a deep hold in the lungs. Again, I don't know whether it's the N-A-C alone or with apo-lactoferrin, there's just much more research on N-A-C since it's been used for other useful things in medicine, like preventing liver toxicity.
Here's an initial study on it from last April in relation to lowering problems with bronchiectasis: https://respiratory-research.biomedcentral.com/articles/10.1186/s12931-019-1042-x.
Here's another research paper on N-A-C and it's effects on breaking up resistant bacterial biofilms: https://www.ncbi.nlm.nih.gov/pubmed/?term=N-acetylcysteine+as+powerful+molecule+to+destroy+bacterial+biofilms.+A+systematic+review

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

trixie1313 | @trixie1313 | Aug 2, 2022

@eileent
I've been using Nutricology NAC for the last two years now and since beginning it have had excellent results in reducing both the cough and the mucus. I started using it once a day and when symptoms get worse switched to twice daily. I used to use The Vest jacket twice daily but had been doing so well that my pulmonary doctor told me I didn't need to use it unless lungs got worse! Also, I could cut down my saline nebulizing from twice daily to once! I had been getting my NAC from Vitacost but recently found it less expensive on evitamins.com. I chose this brand as reviews stated it didn't have the sulfur smell. When I couldn't find this brand, I tried another and the smell was horrific to me as I have a sensitive sniffer. I was happy to find the Nutricology brand once more -seems like companies are supplying it again. Hopefully, the government stays out of it so those of us experiencing COPD or bronchiectasis problems can obtain it.

REPLY
1 reply
alessandre | @alessandre | Aug 2, 2022
In reply to @josey1 "I just looked up NAC and found this, I guess it now needs to be prescribed..." + (show)
@josey1

I just looked up NAC and found this,
I guess it now needs to be prescribed by a physician.

Is NAC banned in US?
In a March 31, 2022 Constituent Update, FDA announced it has confirmed that NAC is excluded from the definition of a dietary supplement.Apr 4, 2022

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Ah, the power of Big Pharma! now UBER-fatted on the billions they're making on "the vaccine". I find it interesting and disturbing that Pfizer& Johnson & Johnson seem to be heavily present as sponsors on PBS.

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fdixon63 | @fdixon63 | Aug 2, 2022
In reply to @sueinmn "Actually, I just checked, and it is more available now than it was late last year...." + (show)
@sueinmn

Actually, I just checked, and it is more available now than it was late last year. Swanson, NOW and several other suppliers are still selling it. The only one available on Amazon is hugely expensive, so look at other vendors. Vitacost.com has many brands and doses available.
Sue

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I get NAC from my local health food store. So far no shortage. I've bought NOW brand 600 mg (100 caps) for $20. The Blue Bonnet brand, 500 mg (90) caps is $22. The store runs a 15% off everything one day a month and I always make sure to go get what I need then.

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alessandre | @alessandre | Aug 7, 2022
In reply to @glendamoseley1 "@alessandre can you tell me what kind of nebulizer you use with the Theranaturals Glutathione? I..." + (show)
@glendamoseley1

@alessandre can you tell me what kind of nebulizer you use with the Theranaturals Glutathione? I have been using the Glutathione as well, however, not happy with my nebulizer! Thanks Glenda

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Only just saw this sorry. I've been using the Drive PowerNeb Ultra but only because it was the model that was sold by the supplier I'd found that was covered by Medicare.
I'd originally use a Phillips Respironics neb. & that worked pretty much the same.

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calinski420 | @calinski420 | Aug 9, 2022

Anyone use NAC while on the Big 3? Did it seem to help?

REPLY
1 reply
caontm | @caontm | Aug 10, 2022
In reply to @calinski420 "Anyone use NAC while on the Big 3? Did it seem to help?" + (show)
@calinski420

Anyone use NAC while on the Big 3? Did it seem to help?

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Yes used NAC for many years. It is supposed to help with coughing up mucus and can protect liver from toxin of Big 3.

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totty | @totty | Aug 10, 2022
In reply to @trixie1313 "@eileent I've been using Nutricology NAC for the last two years now and since beginning it..." + (show)
@trixie1313

@eileent
I've been using Nutricology NAC for the last two years now and since beginning it have had excellent results in reducing both the cough and the mucus. I started using it once a day and when symptoms get worse switched to twice daily. I used to use The Vest jacket twice daily but had been doing so well that my pulmonary doctor told me I didn't need to use it unless lungs got worse! Also, I could cut down my saline nebulizing from twice daily to once! I had been getting my NAC from Vitacost but recently found it less expensive on evitamins.com. I chose this brand as reviews stated it didn't have the sulfur smell. When I couldn't find this brand, I tried another and the smell was horrific to me as I have a sensitive sniffer. I was happy to find the Nutricology brand once more -seems like companies are supplying it again. Hopefully, the government stays out of it so those of us experiencing COPD or bronchiectasis problems can obtain it.

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We are new to diagnosis. You say cough less and have less mucus. We are under the impression that coughing is necessary to loosen and expectorate mucus. And that this would prove lifesaving. Are we incorrect? So much to learn.

REPLY
2 replies
sallysearching | @sallysearching | Aug 10, 2022
In reply to @totty "We are new to diagnosis. You say cough less and have less mucus. We are under..." + (show)
@totty

We are new to diagnosis. You say cough less and have less mucus. We are under the impression that coughing is necessary to loosen and expectorate mucus. And that this would prove lifesaving. Are we incorrect? So much to learn.

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Go on Facebook and join Lung Matters with Kelly Kat. You will find a wealth of information to help you understand how to protect your lungs from further damage.

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trixie1313 | @trixie1313 | Aug 10, 2022
In reply to @totty "We are new to diagnosis. You say cough less and have less mucus. We are under..." + (show)
@totty

We are new to diagnosis. You say cough less and have less mucus. We are under the impression that coughing is necessary to loosen and expectorate mucus. And that this would prove lifesaving. Are we incorrect? So much to learn.

Jump to this post

@totty
While coughing from use of saline in nebulizers helps to break up mucus, it is found that NAC is a mucus-dissolving and anti-inflammatory agent that reduces the frequency of acute worsening episodes.

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1 reply
totty | @totty | Aug 10, 2022
In reply to @trixie1313 "@totty While coughing from use of saline in nebulizers helps to break up mucus, it is..." + (show)
@trixie1313

@totty
While coughing from use of saline in nebulizers helps to break up mucus, it is found that NAC is a mucus-dissolving and anti-inflammatory agent that reduces the frequency of acute worsening episodes.

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Thank you. We are learning so much from this new exchange and quite appreciative.

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