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Is anyone taking Ibrutinib (Imbruvica)?

Blood Cancers & Disorders | Last Active: Jun 21 12:01pm | Replies (21)
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@betnlar

Hello, looking for some help and information. Has anyone started or have a history with ibrutinib 560 mg oral tablets? This will be my 2nd fight with B-Cell Lymphoma located only in my brain? This just showed up after my 3 months of clearance while being given chemotherapy for over a year with my other growth (only located in my brain). I'm so confused and extremely scared. Thank You to all who may be able to help me,
Betty

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Replies to "Hello, looking for some help and information. Has anyone started or have a history with ibrutinib..."
Colleen Young, Connect Director | @colleenyoung | Aug 13, 2022

Hi Betty, I can imagine that you are confused and scared. It must be disconcerting that the lymphoma has returned and to start a new medication.
I'm tagging fellow members who have experience with ibrutinib, sold under the brand name Imbruvica, like @gg17 @bullwinkle @profrich @ejrquast

Betty, when will you start the new treatment? How are you doing?

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kippi1950 | @kippi1950 | Aug 14, 2022

Hello,
Can you share how the recurrence was detected? Was it the control MRI or did you have new clinical symptoms or the old ones coming back or getting worse? Like finding balance or worsening motor skills?

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