Dear Tracy, just saw this note on this very special forum. I have Kappa light chain mgus. I don’t know if there is truth to this , but have seen it 3 or 4 times about curcumin helping to those of us with mgus. Please know you have lots of good support here. Highly intelligent folks giving wonderful advice. Take care. 🥰

I am also newly diagnosed, but it is a little different for me since I am 92. They have put me on the 3 month schedule and I am not very excited about it. Maybe I should be, but at my age, you learn to accept everything and hope for the best. I developed Trigeminal Neuralgia (worse pain in the world) and my neurologist ordered blood work that revealed the M factor. I was given to believe that if I did not progress any time during the next 6 months I would be put on the 1 year check routine. At my age, how many 1 year checks can you expect. I may have had this all my life and not known it??? I have always had a slightly low Red and White cell count, but not enough for anyone to get excited about it. So it is a waiting game, you may never progress any further. Smile, the sun is shining (I hope forecast for today is rain and thunder). If you can get out of bed it is a good day. I will remember you this day in my prayers.
GINA5009

Hi GirlRaye

I do keep my appointments, and I am probably more vulnerable (I have had breast cancer at 36, and a dermatofirosacroma in 1988, and recentely a squamous cell skin cancer), but I try to take these things in stride and just keep on going. For some reason God seems to just keep throwing me back, so I guess I have decided he will take me when he is ready, and my job is to just keep going as long as he wants me to. I have run a boarderline red cell count since I was 20 and no one seems to get very excited. Recently, a small drop in platletts. I am due to see Hematologist later this year. I feel fine, and that is quite an accomplishment at 92. So as long as I can get out of bed in the morning, It is a good day and the sun is shining to day (no rain).

Gina5009