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← Return to MGUS diet: Any tips on food to enjoy or prevent progression?
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MGUS diet: Any tips on food to enjoy or prevent progression?
Blood Cancers & Disorders | Last Active: Sep 3 4:57pm | Replies (137)Comment receiving replies
I think it’s important to note that a very small percentage of patients with MGUS progress to smoldering or multiple myeloma.
I am not an expert. I try very hard to stay away from Dr. Google. Dr. Google seems to focus on worst case scenarios. I was diagnosed about a year ago and I have bloodwork done every three months to ensure that there is not progression. Indeed, there has been virtually none since my first set of bloodwork. I’m grateful for that. Most people don’t have any symptoms with this blood disorder. As a matter of fact, it is usually diagnosed because they are looking for something else. That was the case with me. They did bloodwork in conjunction with a spot I had on my spine which turned out to be osteoarthritis. That’s when they found the M protein in my blood.
Is your physician a hematologist/oncologist? I think it’s important to snag one of those docs and one who has experience with MGUS.
Welcome to the group, although I’m sad that you have to go through the anxiety.
Replies to "I think it’s important to note that a very small percentage of patients with MGUS progress..."
@pmm You took the words right out of my mouth! Absolutely right, a small percentage of people progress to smoldering myeloma, and a small percentage of those progress to multiple myeloma. Most people go for years with a simple MGUS diagnosis, even though they may feel it is super critical, thanks to Dr. Google. That is why we rely on and trust our doctors to monitor things.
@momsys You're certainly not the only one who has gone through this. With the latest technologies, finding abnormal values is easier, but it can certainly lead to anxiety and "oh, no! Now what!?" Falling down the rabbit hole of Dr. Google is easy to do. Ask me, been there, done that! UCLA has great doctors, and you're welcome to come here and ask questions. And vent. And share your experience. We're fellow patients, and getting others' viewpoints helps us all.
Ginger
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I am seeing a hematologist/oncologist at UCLA. He wants me to get a blood test every six months and see him once a year. My PC doctor discovered it when he tested me for neuropathy. Thank you for your kind words and upbeat message.