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Brain not "showing me" my peripheral vision
Eye Conditions | Last Active: Jan 15 8:55am | Replies (34)Comment receiving replies
Wow, great information, thank you for writing that out.
I will check out Larsen and make a post to him as well.
A lot of things sound different than my situation, but it actually all sounds like it could be from the same problem, just having different affects.
I don't have a TOS specialist in my town but I'm sure Dallas (3 hours drive) has someone for that. I will do some searching and see who I can find.
I don't notice posture making a difference in my vision or fatigue, but I know I have poor posture. I may try to practice better posture throughout the day and see if a difference starts to show itself.
My next appointment with my neuro-Opthalmologist is the 11th, I will try to bring some of this up to him, although he seems to kind of just dismiss anything blood flow/pressure related. I may start talking to some other specialists for now that are willing to actually look into it, because it seems to be a decent possibility that this could be where the problem is.
I did meet a therapist once that felt of my neck and face, and mentioned that I should see a TMJ specialist because it felt wierd. I called a specialist, and after some questions she asked, she said it was not the issue.
But a second opinion and finding someone that specializes in TOS would be good to find.
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@88lance Here's another angle for you. The therapists who would be good at working on TOS or issues of restricted tissue that could be anywhere in the body are the ones who do myofascial release. This is specific stretching therapy created by John Barns, and he trains and certifies therapists in his MFR techniques. I have done this therapy a lot. The highly trained ones have Expert Level certifications in the John Barns methods, and my PT is an expert level. I have learned so much from her. PT's will know doctors who specialize in physical problems because they refer patients to them, so if you call a PT and inquire, they may be able to give you a name of a doctor who specializes in TOS, and you'll also have made contact with someone who could likely help treat you.
Here is the list of MFR therapists for Texas. I did a search on the mfrtherapists.com website.
https://www.mfrtherapists.com/app/list.asp?state=TX&country=US
You can also go to the John Barn's clinic (Therapy on the Rocks) for an intensive treatment over several days in Arizona or Pennsylvania. If you are not finding an MFR therapist near you, then call Therapy on the Rocks and you can ask for names of therapists who trained there who may not be listed on the website search page. You can do this therapy even if you don't have a specific diagnosis, but a list of symptoms instead. You just need a doctor willing to let you try it.
https://therapyontherocks.net/This is our MFR discussion from the Neuropathy group where you can learn more. The first pages have a lot of links to information, and there are patients also participating in the discussion.
-Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Would you keep me updated on what you find and your progress? I would appreciate knowing if you find an answer, and what a TOS vascular specialist might say about this.