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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Dec 6 3:31pm | Replies (2018)

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@pwhitney801

Hi, I am a 34 year old male. I live in Salt Lake and so I experience 4 seasons. I was just diagnosed with GD in June after getting home from Mexico and having a severe outbreak. I thought it was an allergic reaction to a sunscreen. My dermatologist guessed it was GD and confirmed once the biopsy came back. I do consider myself lucky because I haven't experienced any extreme itch. Mainly just red dots and rough texture with very little itch. I think it's going away and then will do a bike ride or something outside and they all come back. Interestingly when my red dots come back they are not too itchy- just unsightly.

I have started the cilantro smoothies but it's only been about 2 weeks since I've been consistent- I can update after a month of taking those.

I'm looking for comfort really- I hate the way they look and make it so I can't do so many of the outdoor activities I love doing. I'm hoping as the season changes I might go into remission. Has many people had success with going into remission and still being able to go outside in the heat with no flare up?

One tip that has helped when I get a flare up is I put those thick hand towels that you see sometimes in nice hotel bathrooms, get them wet and put aloe on them, put it in a bag in the fridge so they are really cold. After outdoor activities and the dots get red, I lay it on my stomach (primary area) and let it sit for about 10-15 minutes. It has always helped. You can order those hand towels on amazon. I use them in my guest bath- that's why I had them.

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Replies to "Hi, I am a 34 year old male. I live in Salt Lake and so I..."

One other tip- my dermatologist and her team are incredibly smart and I really trust her judgment. She has been having me use sunflower seed oil as soon as I get out of the shower (helps with inflammation) as well as Cerave. I use this combo in the morning. At night I use sunflower seed oil and amlactin. This can sometimes sting but just for a second. She said this will help rebuild new skin cells which may help with a long lasting remission. Anyone else try these?

Regarding outdoor activity and GD flare-ups, I've had some relief by wearing cotton t-shirts that I have soaked in water. As long the t-shirt stays wet, it cools the skin and relieves the inflammation. Also helps to turn the T inside-out so the seams of the shirt don't irritate the skin, long sleeve T if you have GD on my arms as well as torso.