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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@johnbishop

Thanks again for sharing some hope. That's actually the reason that brought me to Connect in 2016 after being diagosed with idiopathic SFPN at Mayo Rochester and my neurologist telling me the same thing that my primary care had told me after 20+ years of living with the numbness creeping from toes, to the bottom of the feet up into the ankles and then the legs which is when I started wanting to follow up for a diagnosis and see if I could find something that helped. I was in the dumper when the neurologist told me there was nothing that would help with the numbness and I started searching and found Connect. Reading experiences shared by other members has also given me some hope and helped me become a better advocate for my own health.

Not sure if you are into low carb healthy fat living but there is another discussion that has helped me that you might find helpful if you still fit the prediabetes category. I was always a prediabetic denier with my doctor because I frankly didn't understand it and didn't bother to learn more at the time. A little research went a long way to enlighten me and help with my weight loss at the same time.

-- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

If you haven't seen any videos by Dr. Jay Wortman, I think you might really like this one.
-- Dr. Jay Wortman - 'Undoing Atkins: A Cautionary Tale': https://www.youtube.com/watch?v=jIegMp5cWBY

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Replies to "Thanks again for sharing some hope. That's actually the reason that brought me to Connect in..."

One other bit of information that might be of interest. Apologies if this is old news. 🙂

Per a number of recent studies, it seems that post-meal blood glucose spikes are a better predictor of developing SFN than A1C or fasting glucose levels.

In other words, it's possible to have normal fasting glucose and "only" prediabetic A1C, but have post-meal glucose spikes high enough to lead to SFN. As such, relying solely on A1C and fasting glucose testing, as is common practice, can lead to missed signs of trouble.

FWIW, I've seen some studies/doctors advocating for a target post-meal glucose level < 140 to avoid SFN issues, which is lower than the standard guidelines.