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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@nullz

Thanks for the note, John; much appreciated. I don't personally fit enough of the metabolic syndrome criteria to match the diagnosis, but it is interesting that there is increasing evidence that glucose control isn't the whole story w.r.t. otherwise idiopathic peripheral neuropathy.

Although a diet change has improved my symptoms greatly, I'm not convinced that there isn't (also?) something else going on, as my glucose levels barely qualify as prediabetic, and I have a few other other symptoms (e.g., recent large decrease in BP) that are 'atypical'. So articles like the one you linked to make for interesting reading.

I've lurked on Connect for a while, finding it helpful to read of others' experiences, both in terms of learning new things (e.g. your links) and, frankly, finding a bit of hope; the psychological toll of SFN can be rough, and a bit of hope went a very long way when my symptoms were at their worst. I joined and posted today because I saw a message claiming that SFN was always permanent because SF nerves don't regrow (which is, as you know, is incorrect) and wanted to be balance that claim with a story of some success.

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Replies to "Thanks for the note, John; much appreciated. I don't personally fit enough of the metabolic syndrome..."

Thanks again for sharing some hope. That's actually the reason that brought me to Connect in 2016 after being diagosed with idiopathic SFPN at Mayo Rochester and my neurologist telling me the same thing that my primary care had told me after 20+ years of living with the numbness creeping from toes, to the bottom of the feet up into the ankles and then the legs which is when I started wanting to follow up for a diagnosis and see if I could find something that helped. I was in the dumper when the neurologist told me there was nothing that would help with the numbness and I started searching and found Connect. Reading experiences shared by other members has also given me some hope and helped me become a better advocate for my own health.

Not sure if you are into low carb healthy fat living but there is another discussion that has helped me that you might find helpful if you still fit the prediabetes category. I was always a prediabetic denier with my doctor because I frankly didn't understand it and didn't bother to learn more at the time. A little research went a long way to enlighten me and help with my weight loss at the same time.

-- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

If you haven't seen any videos by Dr. Jay Wortman, I think you might really like this one.
-- Dr. Jay Wortman - 'Undoing Atkins: A Cautionary Tale': https://www.youtube.com/watch?v=jIegMp5cWBY