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DiscussionBrain not "showing me" my peripheral vision
Eye Conditions | Last Active: Dec 8 8:32am | Replies (37)Comment receiving replies
Replies to "Could this be lack of blood flow? Not sure where to post this because I'm kind..."
Hi @88lance, I moved your recent posts to your original query so that your further investigations and member responses and history are in one place as you try to solve the seemingly unsolvable.
I'm not a doctor and certainly can't offer solutions where many specialists have not be able to. However, I wonder if this may be an issue that cognitive training might be able to help. I know that's not getting to the root of the problem, but it might help manage the condition until you get to the bottom of this.
@88lance With your theory about altered blood flow, I wanted to share with you a source that could support this if you have a condition that reverses blood flow know as "subclavian steal" and it can cause visual disturbances. This would be possible if you have a problem like thoracic outlet syndrome that compresses blood flow and it can be adversely affected by poor posture. I have thoracic outlet syndrome which is diagnosed by confirming altered blood flow to the brain and arms by the position of arms and head (turning head) with Doppler studies and the doctor listening for the pulse to diminish with changes in posture. Have your specialists considered thoracic outlet syndrome as a possibility? Many doctors miss TOS and it is poorly understood and not given much time in med schools. A neurologist or thoracic vascular surgeon would be possible specialists for this condition.
I refer to this paragraph below:
Source:
Vestibular impairment and its association to the neck and TMJ
Posted on July 22, 2018 by Kjetil Larsen
and found at this link:
https://mskneurology.com/vestibular-impairment-and-its-association-to-the-neck-and-tmj/
"Subclavian steal symptoms presents secondary to arterial insufficiency, created by a retrograde flow that “steals” blood from the brain circulation, more specifically from the basilar artery via the vertebral artery. Classically it presents with neurological symptoms from the posterior brain and cerebellum [4,6]. Decreased flow over the basilar artery gives rise to symptoms like lightheadedness, ataxia, vertigo, dizziness, confusion, headache, nystagmus, hearing loss, presyncope and syncope, visual disturbances, focal seizures, and in extremely rare cases, death [6–10]. However the vast majority of patients are asymptomatic and rarely require any intervention [3,5,11]. – Alcocer et al., 2013"
Here is some more information about TOS
https://mskneurology.com/how-truly-treat-thoracic-outlet-syndrome/
https://www.mayoclinic.org/diseases-conditions/thoracic-outlet-syndrome/symptoms-causes/syc-20353988
Have your doctors mentioned TOS? Have you heard of thoracic outlet syndrome before?
Hi, I'm Sally 44, tested positive for an autoimmune disease. I haven't been diagnosed yet. But, I already have, optic drusen, optic atrophy, and optic neuritis. I read your whole post. I have lack of blood flow throughout my entire body. Causing me alot problems. But, my partner had a stroke in her left eye due to lack of blood flow. She was seen by a ophthalmologist, who diagnosed her with it. She would go and treatments for it. It's hard to explain the treatments, they put a solution in her eye, cover it, then put a needle (she couldn't feel a thing) and did whatever the heck they did. Lol I can't explain it. She can see much better, but she missed her last treatment. And it had to be done that day. I on the other hand haven't been treated. I'm still waiting for my doctor's to order tests. Whatever autoimmune disease I have it's definitely neurological. This autoimmune disease is causing lack of blood flow to my brain. My blood pressure drops so low I pass out. I have no energy. Always feeling fatigue but can't sleep. The list goes on and on. Even lost over half of my hair. Lack of blood flow to the scalp. I never knew that was possible! My condition is quite serious. I've been going through this for 5 months now. Just know that there's someone out here who understands what you're talking about.