Connect
← Return to Jak2 and Vitamin D3
Discussion
Blood Cancers & Disorders | Last Active: Mar 12 4:39am | Replies (37)
Comment receiving replies
I was diagnosed with PCV 3 months ago, but had itching symptoms since 2019. I tested positive for Jak 2 and a bone marrow biopsy confirmed it. I am on 2 baby aspirin a day and phlebotomy’s as needed. I’m wondering if anyone has found relief for the itching and minor fatigue. Unless chemo would slow this disease, I’ll stay with my current regiment. Any advice?
Replies to "I was diagnosed with PCV 3 months ago, but had itching symptoms since 2019. I tested..."
Have you researched black seed oil?
For the itching I stopped taking showers in the winter. I wash my hair in the sink and wash my smelly bits with baby wipes. I can tolerate showers in the summer if they are quick.
Connect
Jakafi has helped me. I do have fatigue occasionally but not nearly as bad as before.