I am a 67-year-old female, and I was diagnosed with EBV back when I was in my early 30's. The symptoms eventually went away but started coming back to haunt me throughout my adult life. It would manifest and I would be almost debilitated with pain and fatigue for a couple of days and then it would subside. I found that many times it was stressed related. Then it was almost like fatigue and aches became a way of life. I started seeing a Naturopath about 15 years ago, and she is a God send! She never stops trying to figure out my symptoms. She discovered by thyroid was low several yeaars ago as well as my Cortisol, but we did get that back to normal, but the body aches and extreme fatigue became a regular issue down the road. Then low and behold she tested me for EBV and my numbers were like so many of you, OFF THE CHARTS! She did tell me it has become CAEBV and we started medication for 60 days at a time. After the first round the symptoms were still evident, but after the second round I am feeling much better. By better I mean, not so achy and the fatigue is bearable, but I still have some days where I have to determine myself to move, get up and get something accomplished! I hate it! I have brain fog but some of that I believe is age related but I'm sure it exacerbates it. My recent testing shows that the numbers have decreased from 600+ down to 535. Better but still symptomatic. I just got the results, so I am waiting to talk with her about them. She also did a more thorough test regarding Lyme, those results have not been returned yet.

Let me tell you though, she is like a ferret. She keeps testing and researching, and we have now tested for Black Mold. It also was positive! Which came first? I don't know yet. I am learning as I go here and always have lots of questions. The one thing that made so much sense was, I was diagnosed with breast cancer June 2020. That came totally out of left field because I am totally not a candidate. I am healthy, active, eat natural, NO CANCER ON EITHER SIDE, breast fed my babies and am small chested. God was good and we caught it early, but it was a totally enigma. Then, after all of these tests, it made a whole lot more sense. My immune system was weak and threatened. I continue to work on staying healthy, exercise (which is not always easy) eat right and take supplements that are recommended.

I have never been told that I am contagious. Initially Mono is, but once it becomes advance into CAEBV, it is not. I also have regular testing done regarding my liver, as CAEBV can totally affect it as well as the medication unfortunately. Hopefully I am done with that for a while.

I hope my story helps for someone out there. Many doctors don't believe, agree or have knowledge about CAEBV. ( Lyme as well). If you are not satisfied, I would find a doctor who does support these viruses, because they are real. Naturopath's usually are not covered by insurance which makes it difficult so all things are in stride and when I can afford them.

Bless you all that are suffering and don't lose heart. There are many of us out here that feel your pain and frustration. Take care and do your best. It is hard to have something that is hard to explain to others. Having a group of people here to chat with, that knows what you are talking about, helps in many ways and to know that you are not crazy :O)