Chronic Abdominal Pain

Longer large intestine

Hi. I've had chronic pancreatitis since 1992 due, the doctors think, to pancreas divisum (incomplete pancreatic duct, so pancreatic juices & enzymes can't flow into the intestines; instead they digest the pancreas. OUCH!!) Pain gets worse as day progresses and/or with activity. I've seen my local GIs in South & Central Florida, a doc at Univ of Miami, a quack in Boston, a terrific doc in New York City. I've had multiple ERCPs with & without sphincterotomies and/or stents and a EUS. Nothing except narcotics really helps. I recently attended a 3 week cognitive pain therapy course at Mayo in Florida which gave some tools to help cope & have a life. Please feel free to ask anything that might help you. jan11442

Hi. I'm new here but will put in my 2 cents worth anyway. The worst part (and most frightening) is the search for an answer to what is wrong. As a retired RN I can tell you that when a doctor can't find the answer unfortunately he will decide its the patient's fault- the patient must be crazy. Don't believe it! Keep your hopes high & keep looking. May I suggest during your search for what is wrong, seek out a program that will help you cope with the unknown & the pain. Good luck. The answers are out there. jan11442

Crazy as it might sound my mom had unrelenting pain in her adbominal area for years and it turned out after everything they put her through (INCLUDING exploratory abdominal surgery) where they removed her gallbladder and spleen she ACTUALLY had a fractured bone in her spine. The pain showed up her in stomach instead of her back. I suggest an MRI of your spinal column. She had tried EVERYTHING else and a doctor paying attention to her rising off of an exam table suggested it could be her back. And she was correct!! They've since discovered she sufferes from thinning of the bones. SHe went to an Interventional Radiologist her inserted cement into bone fractures...here in Tulsa he is Dr. James R. Webb. ( we have 2 Dr. Webb's in Tulsa but this one is Interventional Radiologist).

Another thing if anyone out there is taking pain med's; hydrocodone, oxycont..etc. You should be taking MIRALAX twice a day at least. Those pain med's slow down your BM movements and that alone causes pain on it's on.

I currently have upper adominal pain, all tests were negative, had an ercp & spintomony, still have pain, I went to one doc who told me pain could be because I am fat! I have 33 % body fat, overweight but morbidity obease. He thinks I have delayed gastric empting. which I do not think so, I have pain 20 minutes after eating and can last 1hour to 5 hours. My hurts mostly after eating fatty foods like nuts. and drinking alcohol seams to help with the pain.

My father cannot tolerate a feeding tube either. What is an indweilling port? TPN? How are you getting nutrients?

I have chronic abdominal pain. I have adhesions which are causing small bowel obstruction. My doctor did an enterogram. it can be by CT or MRI. It is different from a routine abdmen scan. it was the only thing that showed my original problem.
I had surgery to get rid of the obstruction but now I have residual chronic pain. Searching for an answer on how to treat it.

I too, suffer from abdominal pain that gets so bad I have to go to ER and get morphine shots (up to 3) to stop the pain, cramps. I have had every test available and am still at no answer. I am considering asking for MRI. Ihave thought about this being really bad gas because it sometimes starts as gas, but develops into a pain that is often unbearable and it causes nausea, vomiting and eventually ER visit. Can someone shed some light or have any suggestions on what to do next?

I was diagnosed with Gastroparesis in Feb. I have had constant unrelenting pain for a year and a 40 pound weight loss. The doctors are at a loss. They say it is likely neurological and the Gastroparesis a result. The pain is totally unmanageable. What do any of you suggest? The doctors are reluctant to order narcotics. What has worked? Has anyone found that their chronic abdominal pain radiating to the back was related to something else in spite of the failed gastric emptying? I need help before I totally waste away. I had a chest ct and a thoracic MRI (negative). Where they wrong is what I wonder? But how do you get someone to look again?