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I had similar symptoms years ago and it turned out that my pancreatic duct was bent which did not allow the pancreatic juices to flow. It took me years to discover this. I had all of those tests too and they came back normal until I had an ERCP with a fantastic gastro wizard at UCSF (San Francisco) Keep track if the pain gets worse after eating (when the pancreas starts to work). Mine hurt more in the morning also because laying flat (sleeping) took the pressure off of the duct then ramped up the rest of the day I hope this helps. I'm on a new journey for chronic pancreatitis that has taken over my life. I'm thinking of going to Mayo clinic for some help to get some (or any) life back. I wish you a positive outcome. Don't give up
Replies to "I had similar symptoms years ago and it turned out that my pancreatic duct was bent..."
@gman007 Gary - just out of curiosity, which medical university did you go to? Thank you so much for your reply and all of your input. I hope today is a good day for you 🙂
The Medical University of SC. It is in Charleston, SC. In the past few years another hospital system in the upstate has begun teaching, but it will be some time before they are likely to have docs who have/are performing high volumes of pancreatic procedures and I would not go anywhere if that is not true. Don't wish to be practiced on.
@mamacita That is interesting. Do you know how this is done - blood test, etc.?
I love MUSC in Charleston! After going to Mayo GI for years and no explanation for my severe pain, my internist sent me to MUSC , along with all my records from Mayo. Turns out one of the early tests was abnormal, but not acted on. I was diagnosed with MALS and had surgery there. Very impressed with GI surgery there as well as vascular surgery.
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I get that. We have some excellent pancreatic docs at our states medical university and my GI sent me there when I was considering Mayo and Johns Hopkins. I don't know how they rank nationally as a group, but I have great confidence in them. It is about a 3 1/2 hour drive from my home and, with my wife driving, we can leave home at 5:30, get there, have an ERCP performed to place a stent or use a ballon to remove stones, etc... and be home by about 6PM. Tough for my wife as she usually has to be back at school the following morning, but it is doable. I hope you can get somewhere you are confident in for a team approach to a diagnosis and then some relief.
Gary