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Restless Leg Syndrome
I started having this burning feeling in certain pressure points in my body. Mostly on the elbows, under forearms mostly on my left side ....mostly worse in the late afternoon and evening. It's usually burning and/or uncomfortable feeling when I am sitting down on couch or chair. the burning sensation like I said on pressure points of the elbows, legs, or butt when sitting even if only 2 mins or so and seems like I can't remain still.......upon getting up and moving around it relieves the sensation. Went to neurologist 4 years ago..........he confirmed that it was Restless leg syndrome............there are different types of RLS but the classic symptoms are a feeling of burning, tingling, and a general sense of unable to relax when quietly sitting or even laying down and relief comes when changing position and/or getting up. Diagnosis is by symptoms....there is not a definitive diagnostic test.........all bloodwork etc.... is normal . I now take Gabapentin, and Klonopin to calm the "restless" nerves...........there is no cure for this ( my Neurologist says )........It's just something you have to learn to live with and take those medications for it..........It is believed there is a link between low iron (which I had) and and RLS . Now I take more iron (but that does not alleivate the symptoms so far . ( even when iron level becomes normal ) . I was diagnosed with low thyroid 5 years ago and started taking the levothyroxine to put my thyroid back to normal which it IS NOW. But even though I still have the RLS........there is a possiblity that I had LOW thyroid for years before I was diagnosed with it........hence I think (my theory) the RLS evolved due to the years of LOW thyroid. This is just my thinking on this. No Dr. Told me of that.....anyways I hope maybe this helps others and they can begin to pinpoint their symptoms and get a diagnoses.
I would love to know others with RLS and how they have dealt with it over the years. It seems to be a tricky act to balance the medications with side effects and still manage the RLS........appreciate any feedback. Thanks Jim B.
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I have foot drop and neuropathy also which I blame of side effects of a bone biopsy at T5. It was diagnosed 2 weeks after the biopsy. My pain doctor who is also a neurologist questioned me as to the onset in relation to the biopsy, but at that time, I was not sure of the timeline. Now I am and I wonder if there is any solution.
He prescribed ankle braces which I do not like to use. I am about to go to PT to see if here is any help there.
Does anyone have experience with this?
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1 ReactionHi Jim! I relate to the description that it’s like having bugs under your skin. I recently put my foot through a hole I rubbed into my sheet. Some times I just can’t hold my legs still. I have found a little relief from getting my iron up to the bottom of the normal range - mostly by eating liver as iron pills really challenge my stomach. I haven’t had my thyroid tested in a long time though I have had normal thyroid tests since my RLS was first diagnosed (in my 20s). I’ll talk to my doctor about that. Worth a try! Thanks.
How do you cope with RLS? I've had it for
more than 30 years, and there seems to be
very little help for us sufferers.
Out of curiosity, what have you tried to reduce/illiminate it? I have had restless legs since 2007 and have also tried a lot. Currently, I am taking Gabapentin and it seems to be helping a lot.
I find myself during the day suffering with restless let’s. At night it’s there but the cream I rub on my legs work very well and I can go right back to sleep. Is anyone else having a problem.
I take Pramipexole, and it helps some, but the strength
of the medicine is starting to lessen.
My doctor put me on Pramipexole. It does help some, but
apparently there is no cure for RLS.
Have you tried wearing knee high Dr. Scholl's socks during the day and while you sleep? Works for me.😊
Have you tried putting Vicks on your legs? Sounds crazy, but it works. I read this tip in Terry Wahls’s book, The Wahls Protocol. I also suffer from occasional restless legs, but the Vicks takes it away. Messy, but worth it, and no pills!
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2 ReactionsI have had RLS for as long as I can remember. I now take requip or ropinerole,. It helps a lot!!¿!!!