Chronic Pain members - Welcome, please introduce yourself

Hello @calimesapeg, I'm sorry to hear you haven't had much relief from your fibromyalgia since 1999. I did a search on Connect and found that @mrmie @nla4625 and @trouble4343 have mentioned Dr. Teitelbaum in other discussions and may have some experience to share with you.

Have you read or looked at any books by Dr. Teitelbaum?

Hello John and ty for your response. I looked at the connect responses and the only one that had a response was marmite.
Yes, I have two of his books. the suggestions are numerous and expensive leaving one to wonder where to start. The suggestions also bring up many questions. I am in the process currently of reading his revised 4th edition version.
Ty

Sounds like an allergy to those meds, to me. But then I do lots of chemical allergies. I've had moh migraines, but not for years. They lasted from 1990 thru 1995. I did have some months off in there. I used to live on the floor of my bedsit (back then), for most of 3 days at a time. Getting up and stuffing some food in my mouth and wash it down, or carefully walking to the bathroom, and then laying back down. The few days off from the pain were spent getting more food and necessities, refilling my prescriptions, and then enduring whole days (or more) of it, all over again. It is truly horrible stuff. And it would sometimes happen 3 times in a week, 3 days of it, at a time. It was the best description of hell on earh I can think of. Because you can barely think through it. Having it only once a week is still hell. My relief began with Imitrix injections (in those days). What to say? Maybe "this too will pass"? It did pass, for me, eventually. I wish I could promise that to your too, that it will end someday. Oh, I stilll get migraines, but without the pain (just the other symptons and there's Odansetron for my nausea). I guess, if I were you I'd try natural products. Try to figure out if you are having a reaction to some of your meds or environmental chemicals you are exposed to. But really, that's a big order for someone having moh migraines, because just enduring what you can't stop is already a big job mentally. I do think that another suffers advice to me to take high B Complex so my nerves would have the raw materials to heal and rebuild themselves did me a lot of good. I can't think of another thing to say. So, I'll pray for ya. So sorry you have to go through this. Really.

I am still suffering from the effects of Emgality 3 months after taking a double dose. No migraine meds have helped me; only made me dizzzier.
Mikayla

@mikayla1 Hey, Mikayla - I'm sorry to hear Emgality hasn't helped you, that's very unfortunate because it does help some people. Eventually, none of the migraine meds helped me either. I took me a while to figure out that I had central sensitization syndrome. The fact that you have dizziness from the meds, makes me wonder if you have central sensitization. A few things to consider:

1. Are treatments are no longer working?
2. Is deconditioning setting in?
3. Are you in emotional distress?

I may have discussed CSS with you before, forgive me, I don't recall. Anyhow, I feel awful when folks are suffering and there may be options by thinking outside of the box. Have you considered Mayo Pain Rehab Center? A lot of migraine sufferers find help there.

Hi
I have joined this group about a month ago, I am not very good at navigating it, I don't always find what I am looking for, or things I had seen before. I am suffering from secondary cough headache, or Primary cough headache just trying to find a Neurologist who understands this type of headache when I cough the pain is excruciating, you want to die it is so bad, I have suffered from Migraines since I am a child and still do, I am in my 80's now. Last year I got some Botox shots to relieve the pain, instead I developed these horrid headaches, I have these every day, when I don't cough they are bearable, but when I cough it is pure hell. so now I suffer from both Migraine and the "Secondary cough headaches" if anyone has had experience with this problem please let me know. I have been to 5 Neurologists so far none have a solution for me. I live in Montreal Canada. I hope someone will know about this condition, I had never heard of it until I got it.
Icart

None of the treatments ever worked. I treat at Jefferson Headache Center in Philadelphia. I just had my 5th blood patch. Getting another one soon for a diagnosis. Might be blood leaking into my veins in my spine. A doctor from Johns Hopkins has done 3 of my blood patches at Jefferson. He is going back to Johns Hopkins soon so I have to move on this. I am absolutely miserable for 3 years every single day. Thanks for the tips. I'll check it out.

Good to hear that you're actively pursuing diagnosis with reputable facilities. I remember what it's like to live in that world of uncertainty. Keep persevering, you'll get there, hopefully sooner than later with a plan for relief.

If time keeps ticking and you don't get firm answers, keep PRC in mind.

I'm curious how your final blood patch will turn out. My fingers are crossed. Do you mind keeping me posted?

What is PRC? I started this journey 6 years ago and there is nothing left for me to try except the blood patches. There is a Danish doctor at Cedar Sinai who sews up the holes if they are, in fact there. I could never make that trip. My friend tried Mayo in Florida with no luck. I don't think they know how to help us. I have migraine with aura but New Daily Persistent Headache is what keeps me on the couch every day. Now my toes are getting numb from this sedentary life. It all sucks. Yes, I will keep you posted. Thanks for caring.

I never heard of this, Icart. Have you tried a Headache Center in Canada? You need to get to a place that just treats headaches.
Mikayla