1. < Neuropathy
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Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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ralphysmom | @ralphysmom | Jun 29, 2022
In reply to @aliskahan "Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who..." + (show)
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Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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4 months, after COVID. I am healthy otherwise, exercise and good diet. No Diabetes.

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Barry Sheales | @user_che214927 | Jun 30, 2022
In reply to @roslyn "The muscles in my legs are weak Any suggestions? I did acupuncture. Not helping." + (show)
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The muscles in my legs are weak
Any suggestions? I did acupuncture. Not helping.

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Rent out a stationary bike
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1straokiegrl | @1straokiegrl | Jun 30, 2022

I was diagnosed with peripheral neuropathy in both feet and lower legs before we discovered my diabetes, which caused the neuropathy.

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John, Volunteer Mentor | @johnbishop | Jun 30, 2022
In reply to @ralphysmom "4 months, after COVID. I am healthy otherwise, exercise and good diet. No Diabetes." + (show)
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4 months, after COVID. I am healthy otherwise, exercise and good diet. No Diabetes.

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Welcome @ralphysmom, It sounds like you are doing well after a round with COVID. Do you mind sharing how you found Connect, what you were searching for?

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John, Volunteer Mentor | @johnbishop | Jun 30, 2022
In reply to @user_che214927 "Rent out a stationary bike" + (show)
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Rent out a stationary bike

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Hi Barry, It's good to see you back and still riding the exercise bike. Do you still use the 3 wheeler outside for exercise?

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John, Volunteer Mentor | @johnbishop | Jun 30, 2022
In reply to @1straokiegrl "I was diagnosed with peripheral neuropathy in both feet and lower legs before we discovered my..." + (show)
Profile picture for 1straokiegrl @1straokiegrl

I was diagnosed with peripheral neuropathy in both feet and lower legs before we discovered my diabetes, which caused the neuropathy.

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Hi @1straokiegrl, Welcome to Connect. Neuropathy, sadly, is one of the results of diabetes. There is another older discussion you might find helpful -- Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/

How are you doing with your diabetes?

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jchet | @jchet | Jul 9, 2022
In reply to @dbentley "I have been dealing with painful peripheral neuropathy for about 10 to 12 years. My main..." + (show)
Profile picture for dbentley @dbentley

I have been dealing with painful peripheral neuropathy for about 10 to 12<br />
years. My main pain is in the bottoms of my feet but the neuropathy has<br />
worked up to my knees. You talk about a frustrating experience. I<br />
have tried every prescription, compounds, Anodyne therapy, Acupuncture and<br />
Spinal Cord Stimulator. I am on a new and improved Spinal Cord Stimulator<br />
now. I was told when all else fails the last thing they can do is a Pain<br />
Pump. Well I have had that for about 2 years and get a steady dose of<br />
Hydromorphone, Fentanyl and Bupivicaine every day, all day long. I can<br />
also take up to 4 Hydrocodone a day and I also take Lyrica. I have had<br />
Bilateral Endovenous Laser Ablation in both legs and Tarsal Tunnel surgery<br />
on both ankles.<br />
<br />
My average pain level is 5 to 6 every day. Now my only hope is that one<br />
of the programs of the new Spinal Cord Stimulator will help. I am<br />
seriously considering going to Mayo Clinic. Would be an expensive trip<br />
from Texas.<br />
<br />
<br />
<br />
<br />
<br />

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What is the new spinal cord stimulator?

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centre | @centre | Jul 10, 2022
In reply to @yeoj "Thanks for the info, I will ask my chiropractic about it. I also have a dropping..." + (show)
Profile picture for yeoj @yeoj

Thanks for the info, I will ask my chiropractic about it. I also have a dropping foot due to chronic sciatica. I don't elect surgery as an option. I know it will not be completely healed. My L4 has slipped under L5, 2 herniated disc's, stenosis and bursitis in hip. This pain has been so intense I wanted to die. Peace to you

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I have a dropping foot too, following successful spinal surgery (can’t have everything😊). My PT at Penn State Rehab Hospital recommended this and I have found it works great in “popping up” the front of my foot so I don’t trip when walking. Take a look: Amazon- Core Products FootFlexor AFO Foot Drop Brace. It’s pricey, but it really works for me. Keep up those exercises too. I used to call my PN leg my “polio leg” because it was like a stick (I think I’m showing my age here, but there are folks on here who remember those days). With ongoing exercise, doing my home PT program, it’s definitely “fleshed out” and stronger. Good luck to us all!

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dp33 | @dp33 | Jul 11, 2022
In reply to @ralphysmom "4 months, after COVID. I am healthy otherwise, exercise and good diet. No Diabetes." + (show)
Profile picture for ralphysmom @ralphysmom

4 months, after COVID. I am healthy otherwise, exercise and good diet. No Diabetes.

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@ralphysmom - Did your neuropathy appear after COVID? Peripheral neuropathy appeared for me after COVID (Feb 2020) before the first National emergency declaration then got worse after COVID in Jan2022.

So I am just learning about PN and how to manage. So far have given up alcohol, caffeine, increased exercise (walk or exercycle, gym) and take nerve friendly supplements. Biggest impact for me was giving up caffeine.

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